CFS_for_19_years
Hoarder of biscuits
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Sir Simon defends the newsletter. On Twitter
- Thread starter Kati
- Start date
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- USA
I just read Wessely's tweets from the last few days. He is CLEARLY getting desperate and grasping at straws. David Tuller is doing a fantastic job of shutting down his nonsensical attempts at defending PACE. Wessely is becoming laughable. 
As I understand it, the knighthood was for his work in getting pscyh treatment for PTSD for combat veterans. (Though my thought is they probably need medical treatment as well.) Still, nothing to do with ME unless some of those veterans were incompletely diagnosed. As I understand it, GWI for example, is quite similar to ME. And there's nothing that says you can't have both GWI and PTSD.
PR is for the most part open to the internet, and rates very highly on Google search engine. Anything said here, is easily available to KCL and QMUL. As well as to NIH.
Large Donner
Senior Member
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The PACE trial should be retracted.
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Given that more patients from the APT and SMC arms than the CBT and GET arms took up the offer of post-trial CBT and GET, then they can hardly argue we biased the 2.5 year outcome against CBT and GET.
They seem to want to argue two contradictory claims: that we biased the 2.5 year outcome against CBT and GET, and that the better results for the APT and SMC arms may have resulted from those patients taking up the post-trial CBT and GET offer.
Both can't be true.
Kati
Patient in training
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You have to return to the basics of the trial, what population were they studying? Patients who had fatigue for 6months or more. They thought they compared apples with apples, but in fact they had a fruit salad. A decade after the trial, they still think they are comparing apples and they keep returning to their fruit salad cohort pretending they deal with apples.
They have played the system so well, for all those years, you know, the medical lobby, the psych lobby, the governments, the insurance company, the media. Everyone (well, just about but not all) is so convinced they are so brilliant. But that is about to change.
Ecoclimber
Senior Member
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Well, I might be one of the exceptions concerning what 'they' call abuse. I have no sympathies for this cabal. They knew what they were doing. They have received accolades, promoted to positions of power and prestige affecting social policy within the UK and elsewhere, are well compensated both publically and privately. They are expert spinmeisters and propagandists utilizing the well-oiled PR machinery of SMC to twists and distort the facts by making ill-founded disparaging remarks concerning the patient population to gain media sympathy. The psych researchers are not victims but are the ones who demonize the patient population for their recalcitrant behavior for not accepting their 'woo woo science' based on the researcher's lack of full disclosure and the failure to perform a double blinded, replication study based on proper scientific methodolgy which is the norm in all scientific endeavors. The playing field is stacked against the patients.
The researchers claim abuse. What abuse? You know what real abuse is? Real abuse is allowing hundreds of thousands of UK ME patients to live in squalor, sectioned off, sent to psych wards, living in social isolation, allowed to die after decades of debilitating pain and medical neglect, demeaned, marginalized, defamed, and held in contempt by the very medical profession these patients depend on due to the unethical and unscientific manipulation of data and the adverse propaganda promoted over the last few decades. Now the light is being shine on these rats and they are all scurrying into the darkness. Even under the FOIA, they call such requests, 'vexations'...give me a break. I have no sympathies for these individuals who insist on demonizing the very patients in the media they are called on to serve. Their purpose is to inflame public opinion and incite trolls against earmarking funding for medical research as well as providing funding for adequate patient benefits...just read the comment sections in the media. I can't believe they have such fragile egos. Hmm...If you can't stand the heat, then get the hell out of the kitchen!
Already it has been reported in the press that the United Nations commission is leading an UK investigation in violation of U.N. charter against basic decent rights for the disabled. http://forums.phoenixrising.me/index.php?threads/un-to-probe-the-uks-deadly-disability-cuts.40482/
The researchers claim abuse. What abuse? You know what real abuse is? Real abuse is allowing hundreds of thousands of UK ME patients to live in squalor, sectioned off, sent to psych wards, living in social isolation, allowed to die after decades of debilitating pain and medical neglect, demeaned, marginalized, defamed, and held in contempt by the very medical profession these patients depend on due to the unethical and unscientific manipulation of data and the adverse propaganda promoted over the last few decades. Now the light is being shine on these rats and they are all scurrying into the darkness. Even under the FOIA, they call such requests, 'vexations'...give me a break. I have no sympathies for these individuals who insist on demonizing the very patients in the media they are called on to serve. Their purpose is to inflame public opinion and incite trolls against earmarking funding for medical research as well as providing funding for adequate patient benefits...just read the comment sections in the media. I can't believe they have such fragile egos. Hmm...If you can't stand the heat, then get the hell out of the kitchen!
Already it has been reported in the press that the United Nations commission is leading an UK investigation in violation of U.N. charter against basic decent rights for the disabled. http://forums.phoenixrising.me/index.php?threads/un-to-probe-the-uks-deadly-disability-cuts.40482/
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Damn right. Like to see them deal with the shit we have to.
Every. Single. Day. Of. Our. Lives.
They still have the option of walking away from all this.
We don't.
ScottTriGuy
Stop the harm. Start the research and treatment.
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My 67 year old mother would like 5 minutes alone in a room with Wessely.
She has a bit of a temper.
She has a bit of a temper.
SOC
Senior Member
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Watch what you say. If these folks are deathly afraid of people with the physical function of 75-80yos, imagine their state of mind when confronted with a healthy 67yo.
They might send the coppers after your mum. Roy S
former DC ME/CFS lobbyist
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SOC
Senior Member
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ROTFLOL!
OMG, he's already gotten to the "I don't remember saying that. I have to go now" stage! Asked the tough questions, he cuts and runs.
Large Donner
Senior Member
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MEmilitant @MEMilitant1
@WesselyS @julierehmeyer @TheLancetPsych @guardianopinion You wrote critically of CBT for 'accepting' vs your 'overcoming disability' in 95.
Simon Wessely– @WesselyS
@MEMilitant1 @julierehmeyer I can't remember what I said yesterday let alone 20 years ago. Anyway, have to do a clinic now. Take care.
Although I don't really understand the first comment the obvious response to Wesselys comment is "so you don't ever know what you are talking about"?
Shocking he can say he cant remember what he said yesterday yet has so much influence. Is this him admitting he is making it up as he goes along?
skipskip30
Senior Member
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Hes turning into walt from breaking bad. He will claim it was all a fugue state next!
SOC
Senior Member
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It's getting more and more clear how much the guy is all artificial -- everything is an act. He puts on whatever persona he thinks will get him the most benefit in the particular situation.