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Booksellercate
I saw your message on this forum and decided to register and post my experience. I believe we are both going through the same problem. Could I ask if you are still taking any PPI's?
I believe what you are currently going through is partly caused as a result of taking PPI. First question to ask yourself is this: Is my problems worse at the moment after I have been on PPI, or was my problem not so bad before PPI?
I have been reading a lot of research paper and so far, it says PPI causes Achlrydria which lead to hypergastrinaemia. Hypergastrinaemia can also be seen with people with H.pylori infection. This is where they have been changes to the stomach that leads to excess production of acid. Achlorhydria is when you have little or no acid. I believe this is why your food is coming back up because you don't have enough acid to digest the food. So it sits in your stomach and can come back up when there's a trigger. I used to have food coming up to my chest, and throat when I was on PPI. Sometimes I will eat and I could feel like the food is stuck in my best and not going down. That's because the food I ate before is still in my stomach and not digested because of a lack of acid. Eating more means my stomach is unable to accept any more. And this can make the food easily come back up. Please do not try HCI, because this would lead to your stomach produce excess amount of stomach acid. I have tried this. I have HCL, and all the digestive enzymes and supplement. They help you digest your food but they trigger excess acid production which is something you also have to avoid.
The bloating, feeling full, loss of appetite, nausea and abdominal pain is exactly what I do experience. That's because of no acid in my stomach. When I eat more food, I would get cramping also like my stomach is forcing my food to pass my small intestine. This is all because there's no acid to digest the food in your stomach and using digestive enzymes will trigger your stomach to produce excess acid which will give you terrible stomach pain. The increase in stomach acid does affect both your stomach and small intestine, the excess acid goes down with your food to your small intestine causing more pain.
My problem started when I had abdominal pain when I went to the A&E. Because my barium test had shown reflux which I did 2 months before going to the A&E, I was given Omeprazole as the doctor thought my stomach was producing too much stomach acid. I had read about the consequences of PPI but I ignored that because I wanted a quick relief. PPI should not be prescribed easily without proof that the stomach makes too much acid.
I noticed very little difference after one week and then came another problem. My stomach started producing excess acid (hypersecretion), because PPI would lower my stomach acid, but the body will eventually figure out that the body is short of acid, and will go into overdrive, thereby producing so much acid. The new problem was now over-production of acid, and I started getting heartburn, chest pain and I could feel the heat from my stomach coming all the way to my throat.
At this point, I thought I had full-blown reflux and stomach problem, not knowing the PPI was behind it. I have done pretty much all the test and scan you can do for reflux and stomach (Gastric emptying, H.pylori, Endoscopy, MRI for stomach, All blood test relating to stomach, SIBO breath test, 24 pH Manometry study, CT scan, X-ray, Comprehensive stool test, and many others which I don't remember at this moment), All test came back negative. I stopped taking PPI after 2 months on it, and my symptoms increased. The funny part of this problem is that doctors don't seem to know what's happening to me. Some thought I had IBS, some thought it is reflux and I should take more PPI.
I'm currently in consultation with 3 doctors on private (one from London bridge Hospital, one from Park side hospital, another doctor that runs a clinic on reflux and he is the leading surgeon on linx surgery for reflux in the UK), and I have consulted with another 3 doctors but didn't go further than the second consultation. Still no answer as to the cause of my problem.
The only problem that stood out among all the test was the 24 PH study, The test was done for about 24 hours and it showed I had no stomach acid for about 18 hours, I only had acid in my stomach between 1am to 3am. They advised it could be achlorhydria. My doctor did Gastrin blood test which showed normal level and he thought this was not a problem.
The Covid 19 situation has given me daily access to all these doctors and I have been quick to rule out problems like Crohn disease with MRI, gastric emptying together with other blood tests. My next step is to fully investigate why my stomach produces excess acid.
My first advice to you is to talk with your doctor about how to stop PPI, and after this, you will have to go through the excess stomach acid problems, but this is the beginning of your solution. I feel much better now than when I was taking the PPI. But I felt worse after stopping the PPI and gradually I am feeling better. But the problem is that the acid rebound is not stopping and it is triggered by almost everything, from eating too much, having oil in my food, eating food with too much acid.
PPI should only be used when there's an extreme need for it. The side effects are scary. When you google side effects of PPI, you only find information that is not bad. But when you read the research papers published about the use of PPI, it is so scary. Currently, I'm on an elemental diet which is a liquid diet. I was 96kg a year ago but I'm now 74kg. All because PPI has changed the whole anatomy of my stomach. I read that the rebound was 60 percent less after 26 weeks. in a research paper. I agree because my rebound has reduced slightly, at this rate it could take another 2 to 3 years to reduce to a level I'm happy with, but I wish it can just stop. It has damaged my stomach.
I have been amazed at how these top doctors have no knowledge of the impact of PPI. And when you suffer from the side effect of PPI, they have no clue and think you have IBS or gastritis. By the way, I was at the A&E yesterday which severe stomach pain. I knew it was my stomach producing too much acid, and the doctors there wanted to give me again more PPI. She told me she has a medical degree and I don't need to explain to her the problems that come with PPI when she clearly has no clue. I had to do a new H.pylori test today just to rule that out once more because I only did the breath test last year.
I do believe our solution lies in making our stomach produce just normal amount of acid or at least stabilize the production of acid. No acid and you will have issues, and too much acid you will have issues. We are currently experiencing both. This is why the problem is so confusing.