I know a lot of you on PR have tinnitus of one form or another, and at various levels.
Come spring I need to see an audiologist because my tinnitus is getting too much. It blocks out some sounds now since the end of last summer, and makes it very hard for me to hear certain peoples voices. I have not experience true silence in about 7 years now. At the end of last summer when this neuroimmune condition worsened, again, the tinnitus tone and volume increased and hasn't decreased since.
If you want to hear what I hear every second of every day and night when I am not sleeping, go to this site.
https://www.audionotch.com/app/tune/
Scroll down to the sound bar. Set you computer volume to about 30%. Set the sound bar volume to 15.67%. Slide the frequency tab on the left to 5380 Hz. Select the Triangle mode, and then hit Play. That is the base level. If I have a flair up of symptoms, the volume increases a lot until the flair up subsides.
They have ways to treat it these days with sound matching and other techniques. But it is brain searing, disturbs my concentration at times, makes me irritable and even anxious at times... there is no escape from the sound. Some days it makes it very hard to listen to music, an audiobook, or understand speech on a movie... or my wife’s voice if she isn't close and facing me.
There are many times I find myself putting on music just to drown out the tinnitus, and avoiding really quiet places. But since the wrong kind of noise makes it worse, I have to be careful what sot of noise I’m around. For me it is the higher tones that wig out my ears because they are closer to the level of my tinnitus. Lower tones are far better.
As I’m sure many of you know, things like:
Can all cause tinnitus. Most cannot be fixed (cured), only managed. Some, however, can be fixed. It depends upon the exact cause. Testing can narrow down the possible causes.
I’ve tried every tapping, massage, pressing modality out there for tinnitus reduction, and none reduced the noise. Some would make it worse for a while.
But there is also something I found out that also causes it - Hyperinsulinomia. It isn’t diabetes, but rather an imbalance of insulin in the blood to glucose. It can be caused by eating too many carbs for your personal constitution. The fix for that is along the lines of the keto or carnivore diet. Many people claim either a huge reduction, or disappearance of severe tinnitus after a few months on such a diet. So, before a visit to an audiologist I’m switching to a keto oriented diet to see if that works. Though years back I was on a Keto diet for many years… and I seem to remember the tinnitus then, but much less than today. Does that mean the Keto helped reduce the level… or more likely the tinnitus was much lower back then and it has simply increased over the years due to the increasing severity of ME/CFS/PoTS, etc? Who knows.
Any personal stories on tinnitus out there? I know @Emmarose47 posted on tinnitus increase after screen time a while back, but have not found a ton on PR dealing with the symptom.
Come spring I need to see an audiologist because my tinnitus is getting too much. It blocks out some sounds now since the end of last summer, and makes it very hard for me to hear certain peoples voices. I have not experience true silence in about 7 years now. At the end of last summer when this neuroimmune condition worsened, again, the tinnitus tone and volume increased and hasn't decreased since.
If you want to hear what I hear every second of every day and night when I am not sleeping, go to this site.
https://www.audionotch.com/app/tune/
Scroll down to the sound bar. Set you computer volume to about 30%. Set the sound bar volume to 15.67%. Slide the frequency tab on the left to 5380 Hz. Select the Triangle mode, and then hit Play. That is the base level. If I have a flair up of symptoms, the volume increases a lot until the flair up subsides.
They have ways to treat it these days with sound matching and other techniques. But it is brain searing, disturbs my concentration at times, makes me irritable and even anxious at times... there is no escape from the sound. Some days it makes it very hard to listen to music, an audiobook, or understand speech on a movie... or my wife’s voice if she isn't close and facing me.
There are many times I find myself putting on music just to drown out the tinnitus, and avoiding really quiet places. But since the wrong kind of noise makes it worse, I have to be careful what sot of noise I’m around. For me it is the higher tones that wig out my ears because they are closer to the level of my tinnitus. Lower tones are far better.
As I’m sure many of you know, things like:
- ear blockages
- perforated eardrum
- overgrowth of bone in the ear
- tumors
- impinged nerves
- headache conditions
- neuroimmune diseases
- autoimmune diseases
- types of cancer
- damage to the 6th cranial nerve
- noise damage
- brain damage
- deficiency of B1
- deficiency of Iron
- deficiency of Taurine
- CCI
- AAI
Can all cause tinnitus. Most cannot be fixed (cured), only managed. Some, however, can be fixed. It depends upon the exact cause. Testing can narrow down the possible causes.
I’ve tried every tapping, massage, pressing modality out there for tinnitus reduction, and none reduced the noise. Some would make it worse for a while.
But there is also something I found out that also causes it - Hyperinsulinomia. It isn’t diabetes, but rather an imbalance of insulin in the blood to glucose. It can be caused by eating too many carbs for your personal constitution. The fix for that is along the lines of the keto or carnivore diet. Many people claim either a huge reduction, or disappearance of severe tinnitus after a few months on such a diet. So, before a visit to an audiologist I’m switching to a keto oriented diet to see if that works. Though years back I was on a Keto diet for many years… and I seem to remember the tinnitus then, but much less than today. Does that mean the Keto helped reduce the level… or more likely the tinnitus was much lower back then and it has simply increased over the years due to the increasing severity of ME/CFS/PoTS, etc? Who knows.
Any personal stories on tinnitus out there? I know @Emmarose47 posted on tinnitus increase after screen time a while back, but have not found a ton on PR dealing with the symptom.
