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Rituxan, 10 weeks in and no major changes yet

Messages
41
Location
Sacramento, CA
What Rituxan is doing for me seems very strange. In the 1st month after infusion I start to feel better, maybe a 30% cut in sensitivity to allergies. Then after that month it slowly stops working until the end of the 2nd month I quickly get worse. As of now Im scheduled to get infusions every 2 months for I believe the next 6 months.
Rats! I have to say I felt better after my second infusion (late November), then was having a lot more pain and whatnot in February. So, it could have been a return of B cells (don't know yet until my labs come in from last week, just before my 3rd round of Rituxan). I also have been doing a lot more than I was in the past, so it's hard to tell...
 

Gingergrrl

Senior Member
Messages
16,171
What Rituxan is doing for me seems very strange. In the 1st month after infusion I start to feel better, maybe a 30% cut in sensitivity to allergies. Then after that month it slowly stops working until the end of the 2nd month I quickly get worse. As of now Im scheduled to get infusions every 2 months for I believe the next 6 months.

That is so interesting and also so different than my experience. What does your doctor think of this pattern? I'm going to reply in your other thread soon, too.

Yes, I want to hear how you're doing!!

For sure and I plan to eventually catch up on e-mails! I don't think you had started the Ritux the last time I talked to you?

Rats! I have to say I felt better after my second infusion (late November), then was having a lot more pain and whatnot in February. So, it could have been a return of B cells (don't know yet until my labs come in from last week, just before my 3rd round of Rituxan). I also have been doing a lot more than I was in the past, so it's hard to tell...

What is the interval between your infusions? Did you have the second in Nov and then third in Feb (or March)? I might be misunderstanding. Normally I don't think the B-cells would grow back within that short of an interval but maybe they can? I will be testing mine around the end of March or early April with the plan to do my 2nd maintenance infusion (which will be #8 total) in the first week of May. I am still waiting for 100% confirmation from my infusion center that they do not need a Prior Auth from my new insurance and there has been some confusion re: this issue.