• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Response to your email inquiry dated September 15, 2010, to Anthony S. Fauci, M.D.

illsince1977

A shadow of my former self
Messages
356
Here is the response to my email advocating more research into CFS! "Talk to the Office of Women's Health." My point was the opposite! I'm kind of fuming!
This is in response to your email inquiry dated September 15, 2010, to Anthony S. Fauci, M.D., Director of the National Institute of Allergy and Infectious Diseases (NIAID), National Institutes of Health (NIH), regarding chronic fatigue syndrome (CFS) and Xenotropic murine leukemia virus-related virus (XMRV) research.

We are sorry to hear about your struggle and can understand your need for information on CFS research. TheNIH, in collaboration with theU.S. Centers for Disease Control and Prevention (CDC) and U.S. Food and Drug Administration (FDA), is investigating the role of XMRV-related viruses in CFS. More information is available about CFS research from theNIH Office of Research on Women's Health (ORWH). You may contact the ORWH at the following mailing address, telephone numbers, and email address:

NIH Office of Research on Women's Health
6707 Democracy Blvd., Suite 400
Bethesda, MD 20892-5484
Telephone: 301-402-1770
Fax: 301-402-1798
Email: ODORWH-research@mail.nih.gov

We hope this information will be helpful to you.

Sincerely,


Correspondence Specialist
Legislative Affairs and Correspondence Management Branch
Office of Communications and Government Relations
National Institute of Allergy and Infectious Diseases
 

Rrrr

Senior Member
Messages
1,591
Here is the response to my email advocating more research into CFS! "Talk to the Office of Women's Health." My point was the opposite! I'm kind of fuming!

This makes me pretty mad, too!! All the more reason to keep writing/calling/faxing fauci's office on a daily basis!!
 

pictureofhealth

XMRV - L'Agent du Jour
Messages
534
Location
Europe
Very good point CityBug. What is the percentage of men estimated to be affected by CFS now? And would they be excluded from any 'CFS' studies funded by the 'Office for Research on Womens' Health' for being men? That is totally unacceptable.