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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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There is a team in Louisiana, New Orleans that Published in April saying the cause is folic acid folate a genetic defect found they now use 5-Methyltatrahydrofolate once daily the genes involved are C677T & A1298C. I did a complete Google search on the A1298C gene it says no Gluten no Sugar they put folic acid in all Gluten foods it says to avoid this food. Where have you been we never hear from you anymore. Folic Acid is also in countless vitamins/minerals & a bad long list of medicine to avoid 2 are aspirin & ibuprofen. @Judee as wellThis is very interesting and I will definitely elaborate on that - thanks a lot!!
I am definitely going to be cautious and I am well aware of the massive gift I received. I would not want to risk anything at all, even if the treatment with antibiotics for such a long time itself might be highly risky.
@Judee as well
That was why the Doctor had said if the Clindamycin did not work to cycle through the other antibiotics & continue on them x xThe Azithromycin helped some but the Clindamycin didn't do anything for me. I think I tried this treatment for over 2 months...maybe close to 3 and the doctor the OP mentioned (Dr Uwe Auf der Straße) said if the Clindamycin doesn't work after several weeks (can't remember how many he said), then it probably isn't going to work for that person.
I still think it's a good thread. It sounds like the OP recovered enough to return to normal life and reading the doctor's files, it does sound like this could help some even who have been ill for a very long time.
I did. I was using one or two others he mentioned as well on rotation.That was why the Doctor had said if the Clindamycin did not work to cycle through the other antibiotics & continue on them x x