TigerLilea
Senior Member
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- 1,147
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- Vancouver, British Columbia
@littlebird6180 I never even thought of this. My dad had it for years in the one hand.Probably the commonest tremor on trying to do things is benign essential tremor.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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@littlebird6180 I never even thought of this. My dad had it for years in the one hand.Probably the commonest tremor on trying to do things is benign essential tremor.
Lastly, wondering if anyone thinks hand tremors of this degree are a sign of parkinsons (I say that knowing full well nobody here is a doctor - and I plan on asking my doctor but just in the interim would love some personal perspective)
If my memory was better, I could better pinpoint when these symptoms began. The tremor seems like it's been around for a year, maybe two but it's gotten significantly worse in the past couple months. The biggest differences in the last year is that I started the beta blocker and fludrocortisone (and I got a Loop recorder implanted in my chest). The tremor is the same in both hands.
Anyway, as I said, I'll post back once I've had the neurology work up. My ME doc said the key is determining whether this is muscular or nerve related before figuring out how best to treat it. It's certainly hard having two little kids and having ME, let alone feeling (at times) like they have to see my hands shaking so much. My oldest (age 6) is always worried about my health so symptoms I can't hide from her are the worst
I'm very happy to hear you have confidence in your doctor and are following your doctor's recommendations.right now I need to determine whether this is muscular or nerve related - if it's the latter, magnesium won't make a difference.
I think it's a matter of physiology versus anatomy. If there is damage to the actual nerves or muscles, magnesium isn't going to repair it. Magnesium would treat physiological disorders, namely magnesium deficiency.However I am puzzled as to why you think that magnesium will not make a difference if it is muscular or nerve related.
I believe that source sounds like a bit of a dick Calling people fools isn't going to accomplish much."... we believe it becomes perfectly clear that a person would have to be a fool to take any chance on not getting enough magnesium for even a single day."
I suggest that you read up on the medical literature, and published peer reviewed medical studies if you think magnesium is not a significant factor in repair. For example...If there is damage to the actual nerves or muscles, magnesium isn't going to repair it.
I've made a lot of improvements with my CFS/ME in the past year but I've had really extreme hand tremors that come and go. They get so bad at times, I can't text or even hold my phone that well. Magnesium sometimes helps
Fludrocortisone (aka Florinef)
However, @Dr.Patient you cannot say that what you think is happening for you is the same thing for all patients, you know? I do not mean that this is the case here, but some patients that hang out here go on getting other diagnosis, or develop something else that is not ME.I have had tremors of hands, mouth, head and neck, since the onset of my relapse, showing up when the fatigue gets severe. I know they are from autonomic nervous system dysfunction, and not due to any other cause. Since I am a physician as well, I chose not to undergo any tests or treatments, since I know they will not help. When my ME gets better, the tremors will go away. I'm not alarmed by them.
It can be really hard as an ME patient to prioritize symptoms to address - from bladder issues, body aches, memory loss, brain fog, tachycardia, dizziness, migraines...
It may not be your intent, but that is the effect your posts are having.Nor do I have any interest in wasting my time to badger or overwhelm anyone, obviously everyone here is able to google.