- Messages
- 22
Hello everyone. I am new to PR and decided to create an account, mainly due to my interest in CCI/AAI's possible connection with CFS/ME. This is the first time I've really resonated with any of the other connections that have spun around the medical community for the last several decades. I was diagnosed with CFS/ME in 1998 when I was only 18. So, I've tried many different avenues in treating this condition to no avail. I have never been as interested or hopeful that something like CCI could finally be the answer to all of my health issues.
I was fairly stable from the ages of 18-33. However, I just turned 40 and these last several years I have declined significantly to the point of being homebound.
I am so overwhelmed by the plethora of information that I wonder if anyone has a quick thought or suggestion to my question.
I just received the results from my .6 tesla upright cervical spine MRI with flexion and extension. They found central protrusions causing mild central stenosis and cord abutment/trace flattening at C4-C5 and C5-C6 and trace disc bulging at C3-C4 and C6-C7.
My Craniocervical junction: Normal alignment.
Clivo-axial angle: 150° flexion, 155° neutral, 170° extension
Grabb-Oakes measurement: 7 mm flexion, 7 mm neutral, 6 mm extension
Harris measurement: 6 mm flexion, 6 mm neutral, 6 mm extensio
The report state no signs of CM or CCI. I know people have mentioned radiologists will miss signs, etc. My question is, is it still worth sending my images to either Dr. B or Dr. Gilete? Or should I get additional images such as the CT Rotational scan or MRI of the skull or possibly the supine 3T? They did state the the quality of the images were moderately poor. So, I'm also concerned about the quality. My POTS was really acting up during the MRI and I had really bad SOB so I had to keep taking big breaths which obviously caused a lot of movement.
I have limited energy and finacial resources and I don't want to put any additional effort into pursuing another diagnosis if the measurements are going to be the same from one dr. to the next. Unless there is more to this that I'm missing as far as how the diagnosis process works???? My MRI was written specifically notating to rule out CCI and CM. So, I'm assuming the radiologist focuses on those areas when reviewing the report? I don't see my neurologist that ordered the MRI until the end of the month so I would appreciate any input!
Thanks for any input!
I was fairly stable from the ages of 18-33. However, I just turned 40 and these last several years I have declined significantly to the point of being homebound.
I am so overwhelmed by the plethora of information that I wonder if anyone has a quick thought or suggestion to my question.
I just received the results from my .6 tesla upright cervical spine MRI with flexion and extension. They found central protrusions causing mild central stenosis and cord abutment/trace flattening at C4-C5 and C5-C6 and trace disc bulging at C3-C4 and C6-C7.
My Craniocervical junction: Normal alignment.
Clivo-axial angle: 150° flexion, 155° neutral, 170° extension
Grabb-Oakes measurement: 7 mm flexion, 7 mm neutral, 6 mm extension
Harris measurement: 6 mm flexion, 6 mm neutral, 6 mm extensio
The report state no signs of CM or CCI. I know people have mentioned radiologists will miss signs, etc. My question is, is it still worth sending my images to either Dr. B or Dr. Gilete? Or should I get additional images such as the CT Rotational scan or MRI of the skull or possibly the supine 3T? They did state the the quality of the images were moderately poor. So, I'm also concerned about the quality. My POTS was really acting up during the MRI and I had really bad SOB so I had to keep taking big breaths which obviously caused a lot of movement.
I have limited energy and finacial resources and I don't want to put any additional effort into pursuing another diagnosis if the measurements are going to be the same from one dr. to the next. Unless there is more to this that I'm missing as far as how the diagnosis process works???? My MRI was written specifically notating to rule out CCI and CM. So, I'm assuming the radiologist focuses on those areas when reviewing the report? I don't see my neurologist that ordered the MRI until the end of the month so I would appreciate any input!
Thanks for any input!