And here is the page to leave a message to Dalton McGuinty Premier of Ontario. Correct me if I am wrong but wasn't he the Premier of the first and only Province that has classified cfs as a neurological disease, meaning it is a recognized disease at least. I thanked him and encouraged him to take leadership in research and funding for centers of excellence.
Emailed Washington Post, Sebelius (DHHS), Frieden (CDC) and AskDrH@ostp.gov
I think it is time for ALL OF US to email Dr. Thomas R. Frieden, Director of the CDC ( email@example.com ), and insist/DEMAND that HE be the one to finally clean up and deal with the CDC/CFS program once and for all.
Frieden needs to be made very aware of what is going on and that millions are aware and advocacy action will be taken -- and the CDC will finally be brought down.
Agree with BRC and DRyes. Don't bother with the researchers as they don't care what you/we all think. They just delete the emails anyway. And what would you say to them anyway? You people are idiots and didn't do a responsible study on XMRV? They know that already.
Hit the journalists, Congress/Parliament and others who can affect change and take action. I wouldn't email Reeves for any reason. Why? I think he knows how much the CFIDS community is furious at him and he is well aware he was removed from the CDC/CFS program prob. because of this pressure. I do want him prosecuted but that waits unitl the research and funding are upped hugely.