voner
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Firestormm,
thank you for taking the effort to write a transcript of that video. Reading the transcript and watching the video has been very useful and enlightening for me. Dr. Newton does a good job of taking complex information and breaking it down into simple terminology for laypeople. I also found it very hopeful that she is teaming up with the immunologist in some of her current research. she is digging for the root cause!
I took notes and wanted to share some quotes from the transcript that struck me. some of it has been discussed in this thread and some has not.(bold emphasis added by me).......
It makes a lot of sense to me to starts using different terminology for what everyone keeps on calling "exercise". Dr. Newton's use of the term "activity management" seems to me to be a far more accurate and much less misleading term.
I have some questions to throw out.
thank you for taking the effort to write a transcript of that video. Reading the transcript and watching the video has been very useful and enlightening for me. Dr. Newton does a good job of taking complex information and breaking it down into simple terminology for laypeople. I also found it very hopeful that she is teaming up with the immunologist in some of her current research. she is digging for the root cause!
I took notes and wanted to share some quotes from the transcript that struck me. some of it has been discussed in this thread and some has not.(bold emphasis added by me).......
- "in a non-CFS/ME world it is well recognised that the lower your blood pressure is the worse you will perform on memory tests. And the more your blood pressure drops when you stand up the more likely your memory is to decline over time."
- "we’ve been able to show repeatedly – in two series of CFS/ME patients and in fatigue-associated chronic diseases – that if you have fatigue or CFS/ME the acid you generate in your muscles is significantly higher and you have greater difficulty getting rid of that acid once you stop exercising. And between bouts of exercise your pH doesn’t go back to normal."
- "we can reverse that accumulation of acid in patients with CFS/ME by adding dichloroacetate to the cell culture where the muscle cells have been exercising.
- "when we did muscle MRI we found there were two distinct groups of patients. There are people who generate huge amounts of acid and there are people who don’t. And actually we believe that the type of exercise that these two different groups do, needs to be different. There’s a huge literature from the exercise physiology field that showsthat actually some types of exercise may make one of those two types of muscle MRI abnormalities, worse. So, we believe that we ought to do a study whereby we get people’s muscle MRI and find out which group they belong to and then we tailor the exercise for the Activity Management – I don’t like the word ‘exercise’ because I know it raises antibodies in people – but that the Activity Management that they are then encouraged to participate in, is different according to what their muscle looks like....."
- "you know I always think about CFS being a big umbrella and that underneath it POTS is one box, orthostatic hypotension is another box, and there will be x number of boxes….....
It makes a lot of sense to me to starts using different terminology for what everyone keeps on calling "exercise". Dr. Newton's use of the term "activity management" seems to me to be a far more accurate and much less misleading term.
I have some questions to throw out.
- Anybody have any information about currently available pharmaceuticals or herbal substances that worked to balance the pH of the blood? As discussed earlier in this thread, the blood of her patients was too alkaline when at rest pre-exertional, and to way too acidic after exertion.....
- In point 2, she says there are two different types of patients. the ones who have way too much acid may relate to muscle pain/neurologic pain associated with chronic fatigue syndrome and fibromyalgia patients and the other patients be ones without associated pain? she does not mention anything about pain in her presentation....