SOC
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I relate to the showering thing! For years I couldn't shower without having to go straight to bed afterwards. Florinef and verapamil (for tachycardia) changed that.All this was years ago and I dropped the florinef and the salt loading once I got too sick to exercise. My BP is much higher now, but I still get the gray-outs and see stars. My biggest autonomic problem is not being able to take a bath or shower because of the intense fatigue and weakness that lasts for hours, and which seems to be connected to tachycardia. I'm just ignoring these problems for now. They are symptoms and not causes.
Treating symptoms can make a huge difference in quality of life for PWME. I'm afraid we have a very, very long wait before we find a root cause and then (maybe) a treatment for the cause. I probably won't be alive by then. Even then, symptomatic treatments are still likely to be used. We know the cause of AIDS and there is antiretroviral treatment, but patients still take symptomatic treatments for some of the results of the infection.