Prevalence of CFS in Canada.

[Mij]

You know what's disturbing? When I became ill 25 years ago there was more understanding of this illness by the medical professionals I saw than in the last 15 years.

There was no internet back then and when my family physician told me she couldn't help me as far as treatments I just picked up the yellow pages and called a random 'health clinic' to try to find information on CFS because I saw a program on t.v about it. I called a health place and was told by the person who answered the phone that it was called Myalgic Encephalomyelitis and she put me in touch with an M.E expert. Every doctor I saw after that from an internist, neurologist, endo etc took me seriously and ran tests. Can you imagine that?

What the hell happened that we are going backwards these days and no one thinks this illness is such a big deal?

 

[ballard]

I was diagnosed 25 years ago and had a similar experience. My internist knew, back then, exactly what I had and referred me to a CFS clinic. She was neither skeptical or dismissive. The clinic tried a few things, but of course nothing helped. I definitely think we have gone backward as far as physician knowledge is concerned. Strange.

 

[PennyIA]

What the hell happened that we are going backwards these days and no one thinks this illness is such a big deal?

Well, the press calling it "Yuppie flu" didn't help.
Getting the label of "Chronic Fatigue Syndrome" and getting it shortened to Chronic Fatigue every time we turn around wasn't a good thing either.
Sure as heck the PACE trial then 'confirmed' any doubts anyone had... sadly.
Add the fact that they've proven depression creates pain and fatigue and voila... now everyone wants to give us an antidepressant and make us start exercising.

:-(

 

[Kati]

And then telling all of the physicians this, coming from a position of authority at the Vancouver clinic is not very helpful, is it?

http://thischangedmypractice.com/author/ric-arseneau/

(And they are talking about sharing the model of care woth other provinces)

 

[PennyIA]

And then telling all of the physicians this, coming from a position of authority at the Vancouver clinic is not very helpful, is it?

http://thischangedmypractice.com/author/ric-arseneau/

(And they are talking about sharing the model of care woth other provinces)

Sigh, so basically, I'm telling them that it's a real disorder, give them yet another term to call it and give them minimal treatment and how to manage... which means the patients go away none the better. At least, I guess, he's offering management advice. I don't get that from my doctor.

I loved this quote:

Our patients need an explanatory model to help them understand their illness. If we don’t provide one, patients will create their own or seek one elsewhere.
​

Well, yah! If you can't help me understand my illness I will absolutely continue to seek out an answer from someone, somewhere. DUH! Isn't that a good thing? Especially given how poor our treatment has been. Seeking better answers is the mindset of maybe I can get better if I find someone who knows how to treat this 'thing'.

 

[Mij]

or this quote:

The diagnosis of ME/CFS, FM, and CSS does not require an exhaustive work-up.

 

[Kati]

or this quote:

The diagnosis of ME/CFS, FM, and CSS does not require an exhaustive work-up.

Dislike. Why are we so undeserving? And this would explain why some patients turn up to be down the road MS or ALS or with a metastacized cancer.

 

[perrier]

If I dont say this in this thread I am going to have to take it to the Grave....

ME in more cases than not is caused by a Viral, Bacteria or Parasitic.

Justin Trudeau has 411,000 Canadians in his own Country as per the stats that do not have "ONE APPROVED TREATMENT"

Further he is able to send $5 Mill for Zika when one over a Billion had been provided to it already by the US.....

Further he has sent $785 Mill for HIV, Malaria and TB....(though serious have effective treatments)

Canadian Healthcare is in worse shape than it has ever had been in larger cities....

- we lack beds
- nurses
- Drs
- Specialists
- Hospitals

Where is your plan Mr Trudeau....you cant help the people in your own country yet you are willing to give away Canadian Tax Payer Money away to other Countries.....

I am sorry if I offend anyone but his actions are not OK when we have millions of sick people recieving inadaquate care for diseases like ME and Autoimmune diseases that are beggining to plague society....

Here here! You took the words out of my mouth! Obama has often sited Canada as an example of good health care. It's a nightmare. I was struck by a truck, taken to a hospital with a broken hip. And left in the corridor from Friday until Monday on morphine, because the doctor to do the surgery was not around on the weekend. Then he cut me like I was a carcass, long cut in the hip, not necessary. My tax dollars go on this barbarism.
And my daughter like every other ME patients gets nothing from the doctors in Canada because it's like speaking Martian when you try to speak of this illness.

 

[Pyrrhus]

Related discussion:

(2007) Prevalence estimates of CFS, FM, MCS from the Canadian Community Health Survey
https://forums.phoenixrising.me/thr...m-the-canadian-community-health-survey.13930/