Hope123
Senior Member
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Federal US CFSAC meeting just announced - MAY 10!
As many of you know, the US federal CFS advisory committe meeting takes place twice a year - usually in May and either October or November. The next meeting has not been scheduled yet [NOW SCHEDULED FOR MAY 10] but I thought I'd start a thread to get people thinking about it, specifically what questions/ issues we have that have not been addressed well and also which gov't departments or officials we want to hear from.
Also, it might be interesting to ask before the meeting whether international advocates can be counted in this time as the last meeting did not allow participation internationally although many around the world depend on US CFS research also. Note that CFSAC is now broadcasted live (and archived) online and people can write to or sign up to speak in-person or on the phone during the CFSAC meeting.
If we get some good ideas beforehand, it might be worth it to send it to Dr. Wanda Jones, who helps run the meeting, or members of the CFSAC committee.
Here is the CFSAC site for more info.
http://www.hhs.gov/advcomcfs/
As many of you know, the US federal CFS advisory committe meeting takes place twice a year - usually in May and either October or November. The next meeting has not been scheduled yet [NOW SCHEDULED FOR MAY 10] but I thought I'd start a thread to get people thinking about it, specifically what questions/ issues we have that have not been addressed well and also which gov't departments or officials we want to hear from.
Also, it might be interesting to ask before the meeting whether international advocates can be counted in this time as the last meeting did not allow participation internationally although many around the world depend on US CFS research also. Note that CFSAC is now broadcasted live (and archived) online and people can write to or sign up to speak in-person or on the phone during the CFSAC meeting.
If we get some good ideas beforehand, it might be worth it to send it to Dr. Wanda Jones, who helps run the meeting, or members of the CFSAC committee.
Here is the CFSAC site for more info.
http://www.hhs.gov/advcomcfs/