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Hi - I am interested of people’s experiences of treatment with Kenny De Meirleir and whether anyone has had a significant and sustained improvement in symptoms of chronic lymes?
I saw him in early 2015, did the 12 weeks IV abx followed by oral protocol. Definitely saw an improvement in first 6 months to a year but then plateaued. Continued to take oral abx for about 2.5 years but had no further improvement so in the end stopped taking them because I couldn’t justify the cost of it all.
I am definitely better than I was and can do more than before I saw him, but am still plagued with exhaustion, poor sleep, exercise intolerance.
Also he prescribed 2mg Lormetazepam per night to help with sleep. I never took the whole dose as was wary about it - I took which about a third a night which worked for ages however eventually stopped working. I decided to try and come off it but you can’t get it in UK so I saw a private psychiatrist who suggested switching to diazepam and gradually reducing the dose. Am down to 4mg per night. This is ok but it doesn’t feel restorative sleep and I wake up exhausted most mornings.
does anyone relate to this or have a more positive experience? Has anyone become symptom-free through his treatment?
I saw him in early 2015, did the 12 weeks IV abx followed by oral protocol. Definitely saw an improvement in first 6 months to a year but then plateaued. Continued to take oral abx for about 2.5 years but had no further improvement so in the end stopped taking them because I couldn’t justify the cost of it all.
I am definitely better than I was and can do more than before I saw him, but am still plagued with exhaustion, poor sleep, exercise intolerance.
Also he prescribed 2mg Lormetazepam per night to help with sleep. I never took the whole dose as was wary about it - I took which about a third a night which worked for ages however eventually stopped working. I decided to try and come off it but you can’t get it in UK so I saw a private psychiatrist who suggested switching to diazepam and gradually reducing the dose. Am down to 4mg per night. This is ok but it doesn’t feel restorative sleep and I wake up exhausted most mornings.
does anyone relate to this or have a more positive experience? Has anyone become symptom-free through his treatment?
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