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Post Lyme Treatment with KDM

MartinK

Senior Member
Messages
190
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264
Hi all! My new LTT for Lyme is positive, CD57 (NK cells) are still low and also my IFN-G.
Looks like chronic Lyme still beats me!

I go back to Disulfiram (Antabuse) treatment. First two weeks - 50 mg / daily. No side effects, only drowsiness in the afternoon.

Anyone else now in Disulfiram? How looks KDM Lyme treatment now? Mainly Disulfiram?

Cheers, Martin
 

Cipher

Senior Member
Messages
181
Likes
278
Location
Sweden
Hi all! My new LTT for Lyme is positive, CD57 (NK cells) are still low and also my IFN-G.
Looks like chronic Lyme still beats me!

I go back to Disulfiram (Antabuse) treatment. First two weeks - 50 mg / daily. No side effects, only drowsiness in the afternoon.

Anyone else now in Disulfiram? How looks KDM Lyme treatment now? Mainly Disulfiram?

Cheers, Martin
How long did you take Disulfiram previously and at what dose?

Here's some info you might find interesting (source):
Borrelia
When diagnosis is delayed, patients often experience persistent symptoms. Research into solutions has involved screening of existing drugs for activity against borrelia.
One drug identified in this process is disulfiram, a drug commonly used to address alcohol abuse. It was identified through high-throughput screening, has been found to be useful in documented case studies, and is currently in clinical trials. Patients who have tried it have had success in treating Lyme disease. However, treatment protocols are still not entirely clear. Alcohol must be avoided, both ingested and topical, and one thing that has become clear is that it is important to go low and slow in order to avoid side-effects.
If your doctor prescribes disulfiram, useful information is available at:
Doctors should be aware of potential issues with neuropathy among Lyme patients which may be averted by using enteric-coated capsules:
Azlocillin has also been shown to have potential for use in future: https://www.nature.com/articles/s41598-020-59600-4
Bartonella
Methylene blue has been found effective against bartonella in high-throughput screening and early experience shows it is useful in treating persistent Bartonella. It is also active against Borrelia.
If your doctor prescribes this, more information is available at:
https://www.facebook.com/groups/2067807336861825/

HBOT (or perhaps just breathing concentrated oxygen) might also be effective against lyme.
 

MartinK

Senior Member
Messages
190
Likes
264
Hi @Cipher , HBOT was a miracle for me! Great treatment with many benefits.

Thanks a lot for info and novel in Lyme treatment. My first treatment with Disulfiram was 3 months long, I reach 250 mg before diarrhea problems started.

And I have great news now!!! Only 3 weeks on Disulfiram now on 50 mg and my CFS and inflammation is little bit better! Today I walk around my house. No bedbound for all day. Amazing :) Im really happy!
 

unicorn7

Senior Member
Messages
167
Likes
647
Hi @Cipher , HBOT was a miracle for me! Great treatment with many benefits.

Thanks a lot for info and novel in Lyme treatment. My first treatment with Disulfiram was 3 months long, I reach 250 mg before diarrhea problems started.

And I have great news now!!! Only 3 weeks on Disulfiram now on 50 mg and my CFS and inflammation is little bit better! Today I walk around my house. No bedbound for all day. Amazing :) Im really happy!
Good to hear!
I am doing very well on disulfiram as well.
 

MartinK

Senior Member
Messages
190
Likes
264
Hi all, another progress with Disulfiram!
Im still only on 50 mg/day, but some days ago I have some problems with sleep and I slept less than 8 hours at night. This always causes me PEM! In last months for 4 - 5 days...and full bedbound.
But now no problem with 6 - 7 hours of sleep, no PEM and this days I took a small bike ride around the house.

This is amazing. I think when I beat Lyme, my life will be back. Lot of testing shows that I am otherwise a very healthy person and I have already fixed many things...like SIBO or inflammation (inflammation was crazy - it seemed to me like my back burns when I lie in bed and now it's cool).

@Sushi I wrote lot of about my HBOT experience in past, but I can't find it now. I did 30 and 50 sessions in hard chamber. First time it was a miracle for me and I was able to do lot of my favorite activities for 0,5 year! Its a 2 years ago. Great times!

Martin
 

unicorn7

Senior Member
Messages
167
Likes
647
Great to hear! I have the same thing, treated my Sibo and inflammation, that made it a lot better, but the disulfiram Is making a very big difference now. I only hope the effect will stay once I stop the medication.
 

unicorn7

Senior Member
Messages
167
Likes
647
MCAS, yes. Mycotoxins, no. I have been on disufiram for 5 months now, went very slow and had to go back three times, because I couldn’t handle it. I have been on my full dose now for 1,5 months and I’m doing very well now.