I dread summer ever year in the UK because it feels like it may kill me.
I go through periods of sleeping for days on end, my POTS coming back, a feeling of vasoconstriction and " muddy" blood. Other times, I experience sort of manic episode s and dark depression.
I become irritable. I have much less energy etc.
Obviously everyone here has likely seen Dr afrin' s work on MCAS. He reckons about 70 % of m.e. sufferers have mast cell activation as their primary kick start to the illness.
This year, I've discovered piriton and added it to low dose aspirin and i feel less likely to have a heart attac or suffer those manic episodes.
I still can't excercise etc but it takes me away from becoming severe.
Does anyone else have a similar experience.
Recently, I added topical magnesium, diaezepam low dose, piriton, low dose aspirin, calcium channel blocker and ramipril as wel as electrolytes and being hydrated.
I felt....bloody normal....no terror...no POTS. I could walk down the street. No sensorial issues.
It was bliss ..just to be normal. It lasted all of half an hour, but I was able to walk outside in the day for half an hour.
If I can come up with that little chain of meds, surely Afrin and the Ron Davies etc have developed things further. Any further ideas,??? Similar experiences?
I go through periods of sleeping for days on end, my POTS coming back, a feeling of vasoconstriction and " muddy" blood. Other times, I experience sort of manic episode s and dark depression.
I become irritable. I have much less energy etc.
Obviously everyone here has likely seen Dr afrin' s work on MCAS. He reckons about 70 % of m.e. sufferers have mast cell activation as their primary kick start to the illness.
This year, I've discovered piriton and added it to low dose aspirin and i feel less likely to have a heart attac or suffer those manic episodes.
I still can't excercise etc but it takes me away from becoming severe.
Does anyone else have a similar experience.
Recently, I added topical magnesium, diaezepam low dose, piriton, low dose aspirin, calcium channel blocker and ramipril as wel as electrolytes and being hydrated.
I felt....bloody normal....no terror...no POTS. I could walk down the street. No sensorial issues.
It was bliss ..just to be normal. It lasted all of half an hour, but I was able to walk outside in the day for half an hour.
If I can come up with that little chain of meds, surely Afrin and the Ron Davies etc have developed things further. Any further ideas,??? Similar experiences?