@heapsreal, if you see the discussion above, contrary to what I said earlier, @Wonkmonk points out that high doses of Valtrex and Famvir have been shown to work against cytomegalovirus. So maybe your continuous use of Famvir over the years did help fight CMV. What daily dose of Famvir have you been using over the years?
I recall dr Lerner saying it can several years to clear out and suppress these herpes viruses. Many quit of they dont feel any results in a couple of weeks, ive suggested 3 months but maybe for some it takes much longer. I can see people being hesitant or discouraged when told a treatment can take years. Theres not alot of ways to measure progress unfortunately, and progress can be at a snails pace and hard to judge if its helping. Also hard to test that these viruses are active, so jumping on a treatment that can take years and a cost that adds up. Its really an educated guess/gamble??
Ive been on famvir since 2009. Stopped several times but have had viral symptoms return as well as blood work indicating some type of infection. The first few years i was taking 250mg twice a day. I think 2015 when shingles became an obvious issue for me and i think this was when i started taking 500mg twice a day. I would still have the odd viral flare up and would take 500mg four times a day for a couple of days. Im currently on 500mg twice a day. My last shingles flare up was september and short lived with high dose AV to nip it in the bud.
If i can go 12 months with no flares, i will look again at stopping. I will add that ive also had big improvements on TRT. My testosterone levels have steadily been dropping since cfs and my free testosterone has always been low since cfs. Testosterone in men is greatly under rated in its effects on a mans immune function. HIV research has shown great improvements in immune function when testosterone levels are optimized. Treating infections directly is important but it needs to be backed up by something to get the immune system firing. There is hiv research showing trt increasing nk function in these people. Also my neutrophil count has been low for many years and now my neutrophil count is within normal range.
Sorry for the long post but i had to mention the avs have been very helpful but also that trt has been greatly added to my current improvements. Id rate myself at 9-9.5 out of 10.