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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I see nearly half of us are pessimists.
Anyone want to discuss this ? @Simon @A.B. @Bob @Sean @TiredSam @snowathlete @Sidereal @Valentijn @SOC @Snow Leopard @ScarecrowEstimates of Funding for Various Research, Condition, and Disease Categories (RCDC)
It says it was published 10 Feb 2016.
It doesn't make for good reading.
Has this been discussed ?
Anyone want to discuss this ? @Simon @A.B. @Bob @Sean @TiredSam @snowathlete @Sidereal @Valentijn @SOC @Snow Leopard @Scarecrow
I predicted a hopeful $20-30 million in the poll but am honestly not surprised to see an estimate of $7 million at this stage. The infrastructure needs to be developed for the money to be spent productively.Anyone want to discuss this ? @Simon @A.B. @Bob @Sean @TiredSam @snowathlete @Sidereal @Valentijn @SOC @Snow Leopard @Scarecrow
Estimates of Funding for Various Research, Condition, and Disease Categories (RCDC)
It says it was published 10 Feb 2016.
Without knowing how they make this estimate, one should not read too much into it. It may be a simple extrapolation from previous years. Wait and see.
It's obviously a disgrace, but at the moment it's only an estimate, who knows who plucked it out of the air and what it's based on. I optimistically hope that if there's any encouraging progress in the research over the next couple of years, or attitudes to ME/CFS (which, again optimistically, are showing some signs of improving), then the amount invested in research may increase dramatically and these estimates confined to the dustbin of history where they belong. I'd say it's a case of wait and see at the moment, and if nothing has changed by 2017 then it'll be time to man the barricades again.Anyone want to discuss this ? @Simon @A.B. @Bob @Sean @TiredSam @snowathlete @Sidereal @Valentijn @SOC @Snow Leopard @Scarecrow
Yes but it's an estimate which shows an intention. If they intended to spend more it would be built into the estimate. In any case an estimate is generally a +/- figure of a certain value for example 10% not 100%.It's obviously a disgrace, but at the moment it's only an estimate, who knows who plucked it out of the air and what it's based on. I optimistically hope that if there's any encouraging progress in the research over the next couple of years, or attitudes to ME/CFS (which, again optimistically, are showing some signs of improving), then the amount invested in research may increase dramatically and these estimates confined to the dustbin of history where they belong. I'd say it's a case of wait and see at the moment, and if nothing has changed by 2017 then it'll be time to man the barricades again.