It's obviously a disgrace, but at the moment it's only an estimate, who knows who plucked it out of the air and what it's based on. I optimistically hope that if there's any encouraging progress in the research over the next couple of years, or attitudes to ME/CFS (which, again optimistically, are showing some signs of improving), then the amount invested in research may increase dramatically and these estimates confined to the dustbin of history where they belong. I'd say it's a case of wait and see at the moment, and if nothing has changed by 2017 then it'll be time to man the barricades again.