@Countrygirl Interesting. How come orthostatic blood presssure is relevant?
Do you know if trace protein is significant or if occasional issues with antidiuretic hormone is seen?
I was quoting Dr Weir as I sent him the OP's description of the problem and he phoned me about it.
He was probably considering low blood volume to be a factor and certainly one that should be taken into consideration.
Protein is certainly a sign that there is a kidney problem while low levels of ADH is regularly found in ME and treated with desmopressin. Dr Weir always advises that plasma and urine osmolarity be checked to determine the level of ADH. However, I don't think that is relevant here.
I had similar symptoms but it was accompanied by heavy blood loss and very large clots for several days. I too had a swollen belly and face, was unable to pee, and finally was given a diagnosis of glomerulonephritis. Maybe it is the same in this case?