AndyPR
Senior Member
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Remember troops, a Guardian account is free and then enables you to comment and recommend comments, so lets get to it!!
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Sufferers of chronic fatigue syndrome have been neglected too long. But our Pace trials show the right talking and exercise therapies can make a real difference
However, many patients were not using them, following instead a self-guided treatment called “pacing”: listening to the messages from their bodies and pacing themselves – trying not to do too much, wary of pushing themselves to a point where they might make the illness worse.
And by recovery we mean recovery from a patient’s present episode of illness – which is not necessarily the same as being cured, as someone might fall ill again.
From here on this should have become a happier story. However, some of the ensuing newspaper headlines – such as “Got ME? Just get out and exercise, say scientists” – gave the misleading impression that patients just needed to pull themselves together, or even that they were making it all up. In our clinics we had seen far too much suffering to ever think this illness could be dismissed in this way.
Wow!
Tweaks!
Wow!
Those naughty tweaking patientsTweaks! As primarily suggested by Peter White in the protocol!
I have put a comment in but it has immediately disappeared.
donehttp://healthinsightuk.org/2016/09/...fraction-as-effective-as-experts-claim-it-is/
Is someone able to post this peice in the guardians comments?
Obviously it means that ME patients needWhy is Peter white so excited about treatments that had null results at ~2.5 years?
Which has been the MO throughoutThe comments section won't be in the print version. He's taking a Newt Gingrich approach - what matters isn't facts, but how people feel. So he's fighting for the hearts of people who don't have access to the facts.