Old Bones
Senior Member
- Messages
- 808
If my team’s research on ME is rejected, the patients will suffer
Peter White
Sufferers of chronic fatigue syndrome have been neglected too long. But our Pace trials show the right talking and exercise therapies can make a real difference
He just doesn't give up! This article, posted in The Guardian today:
https://www.theguardian.com/comment...tients-suffer-put-off-treatments-our-research
A few gems:
"For many years Nice (the National Institute for Health and Care Excellence, which oversees healthcare evidence) recommended just two treatments – graded exercise therapy (GET) and cognitive behavioural therapy (CBT) – because it had the best evidence that these therapies worked "
"The idea of doing exercise therapy was scary for some patients, worried that over-exertion would exacerbate their ill-health."
"The results of our study, published in The Lancet in 2011, were clear – those patients given CBT or GET experienced significantly greater improvements in both symptoms and ability to do things, compared with either pacing therapy or specialist medical care alone. Not only were CBT and GET more effective: crucially, they were just as safe as the other treatments when done correctly."
"Whichever way the data is viewed, patients get better results from CBT and GET – both confirmed as safe . . . "
"This whole affair is perhaps saddest for the patients themselves, . . . However, if their campaign puts people off trying CBT and GET, it will be the patients themselves who will suffer the most."
Peter White
Sufferers of chronic fatigue syndrome have been neglected too long. But our Pace trials show the right talking and exercise therapies can make a real difference
He just doesn't give up! This article, posted in The Guardian today:
https://www.theguardian.com/comment...tients-suffer-put-off-treatments-our-research
A few gems:
"For many years Nice (the National Institute for Health and Care Excellence, which oversees healthcare evidence) recommended just two treatments – graded exercise therapy (GET) and cognitive behavioural therapy (CBT) – because it had the best evidence that these therapies worked "
"The idea of doing exercise therapy was scary for some patients, worried that over-exertion would exacerbate their ill-health."
"The results of our study, published in The Lancet in 2011, were clear – those patients given CBT or GET experienced significantly greater improvements in both symptoms and ability to do things, compared with either pacing therapy or specialist medical care alone. Not only were CBT and GET more effective: crucially, they were just as safe as the other treatments when done correctly."
"Whichever way the data is viewed, patients get better results from CBT and GET – both confirmed as safe . . . "
"This whole affair is perhaps saddest for the patients themselves, . . . However, if their campaign puts people off trying CBT and GET, it will be the patients themselves who will suffer the most."
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