*GG*
senior member
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- 6,389
- Location
- Concord, NH
Empower the 1 in 10 Americans with rare diseases through knowledge
NORD will update and expand the Rare Disease Database, a unique online resource that provides reports in patient-friendly language on more than 1,200 rare diseases. A rare disease affects fewer than 200,000 people, and together they affect nearly 30 million Americans. Many rare diseases are obscure and extremely difficult to diagnose, and the patients suffering from them often feel terribly isolated and are desperate for any information.
These reports provide information on symptoms, causes, treatments, clinical trials, and links to other sources of help, like patient support groups and other health organizations.
Educational tools and resources about specific rare diseases are a powerful way to empower patients to become self advocates.
NORD strives to add new reports and update the current ones with the most up-to- date information; however, with meager resources this is often difficult. The reports are written by medical writers and are reviewed at no cost by medical experts.
How will the 50K be Used?
$ 30,000 Salary for 2 Medical Writers
$ 5,000 Salary for Editorial Assistant
$ 10,000 Salary for Medical Editor
$ 5,000 IT Support
http://www.refresheverything.com/nord
NORD will update and expand the Rare Disease Database, a unique online resource that provides reports in patient-friendly language on more than 1,200 rare diseases. A rare disease affects fewer than 200,000 people, and together they affect nearly 30 million Americans. Many rare diseases are obscure and extremely difficult to diagnose, and the patients suffering from them often feel terribly isolated and are desperate for any information.
These reports provide information on symptoms, causes, treatments, clinical trials, and links to other sources of help, like patient support groups and other health organizations.
Educational tools and resources about specific rare diseases are a powerful way to empower patients to become self advocates.
NORD strives to add new reports and update the current ones with the most up-to- date information; however, with meager resources this is often difficult. The reports are written by medical writers and are reviewed at no cost by medical experts.
How will the 50K be Used?
$ 30,000 Salary for 2 Medical Writers
$ 5,000 Salary for Editorial Assistant
$ 10,000 Salary for Medical Editor
$ 5,000 IT Support
http://www.refresheverything.com/nord
