I agree.
That is actually true and in MCAS, exercise or exertion is a trigger of histamine for many people and can trigger an allergic reaction/episode.
would that someone ( a doctor????
I agree.
That is actually true and in MCAS, exercise or exertion is a trigger of histamine for many people and can trigger an allergic reaction/episode.
would that someone ( a doctor????) would have told me that 6 years ago, would have suffered a lot less and a lot less damage to my body too)
Figure 1. Some Potential Mast Cell Triggers
- Heat, cold or sudden temperature changes
- Stress: emotional, physical, including pain, or environmental (i.e., weather changes, pollution, pollen, pet dander, etc.)
- Exercise
- Fatigue
- Food or beverages, including alcohol
- Drugs (opioids, NSAIDs, antibiotics and some local anesthetics) and contrast dyes
- Natural odors, chemical odors, perfumes and scents
- Venoms (bee, wasp, mixed vespids, spiders, fire ants, jelly fish, snakes, biting insects, such as flies, mosquitos and fleas, etc.)
- Infections (viral, bacterial or fungal)
- Mechanical irritation, friction, vibration
- Sun/sunlight
Here is a list from TMS (the Mastocytosis Society) of potential triggers. I highlighted "exercise" so you could see it on the list. One of the major triggers not on the list for me is artificial dyes found in many foods and meds, especially Yellow #5 or Tartrazine. But exercise is a huge mast cell trigger for many people. This is the link: https://tmsforacure.org/symptoms/symptoms-and-triggers-of-mast-cell-activation/
Could you point me to a starters what are causes for this and what can be done in the food/natural supplements department?
@Sundancer I am happy to help if I can but don't want to take this thread off track (which is my specialty). Can you let me know via PM if you have specific questions re: MCAS? I am a little behind on PM's but I always reply. So many people went above and beyond to help me when I was acutely ill and I want to do everything I can to pay it forward. The TMS website is a good resource and let me know what you are looking for via PM so I don't take Hip's thread off track.
@Hip do you believe the nightly wired and related symptoms are due to glutamate overactivation and not something else plausible like lactic acid buildup in the brain?
What I find tends to trigger more fatigue and brain fog than you might expect is any activity that involves crouching down for a while, then standing up, and doing this repetitively. Like for example cleaning the bottom of your cupboards. I think that's because with POTS, my body cannot adjust blood flow properly when standing up after being crouched down for some time.
It's possible I guess that some of the tiredness that comes on after I do the squats is POTS-related (rather than just muscle fatigue-related). But in any case, when I am trying to get to sleep, in those circumstances that tiredness is welcome and useful.
Dictionary result for malaise
/
- a general feeling of discomfort, illness, or unease whose exact cause is difficult to identify.
Epinephrine, or adrenaline, is a hormone secreted by the adrenal glands. Part of the body's 'fight or flight' response, adrenaline is released during periods of stress on the body. It plays a role in exercise physiology and even the thought of exercise may stimulate an adrenaline rush. Mar 24, 2017
Yes, that's what I do myself for exercise, a stroll down my road.
But the technique detailed here is not really for exercise purposes, but to help get to sleep. And I think this technique will probably only work if you do it just before you get into bed.
Sit-up might then be a better substitute, though the amount of exercise performed would have to be figured out carefully; you would not want to do so much that you cause PEM the next day.
For some patients it may be that for example just 90 seconds worth of sits-ups as you get into bed may reduce the "wired" state enough to help sleep; but doing more than that may lead to PEM. That's assuming this technique does work for other ME/CFS patients.
I might be allowed to assume for now that all feelings of our illness are generated in the brain.So I guess those who only have ME/CFS mildly may well find it the same.
This "PEM yourself to sleep" technique involves doing a very short burst of intense exercise
Im shocked to find out just how weak I am now.