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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Here's an older article of using the HR monitor to track. I like how it gives specifics on how that Workwell patient managed to exercise 3x per week laying down and thereby improve her AT threshold and PEM recovery time.
https://solvecfs.org/using-a-heart-rate-monitor-to-prevent-post-exertional-malaise-in-me-cfs/
Thank you for posting that article!!!
Could it be the long-sought cure for ME/CFS?It claims I am fit.
I'm just curious how other people's recovery is after sleeping. How much improvement can you get?
Exceptionally low stress/high HRV means I'm in a crash and need to rest - I find I'm alerted to the crash earlier than I would be otherwise, so I can get resting sooner.
WellTory worked well for me, I mean the results are awful but not exactly unexpected. Also showed quite a difference inline with how I and the better half feel so its certainly measuring something different and giving each of us consistent results. The pro version that apparently can link to Garmin (I doubt it can make my old Vivo active do this but who knows) is ludicrously expensive, $12 a month that is too high. I have been using heart rate as a good proxy for exertion but never had anything that could measure mental exertion, I wonder if HRV manages to do that. If so it could be a really important find.
What I ultimately want here is a device that beeps/vibrates the moment I am overexerting so I can stop and rest. Then I can get on with as much as possible and stop what I am doing. My Vivoactive only does that when an activity is running but ideally I want it all the time I am awake.
I don't have a phone sensor or any device that measures HRV. I have a plain smart phone and an old-fashioned wrist watch! So I have to buy something to measure HRV and I chose the corsense device because it seems to be the most accurate and the easiest to use, just like a pulse oximeter.Mary the instructions say you have to take the readings from the same position every time. I do mine sitting twice a day. Maybe that's what is messing you up. You don't need to purchase equipment. The phone sensors cover it.
I don't have a phone sensor or any device that measures HRV. I have a plain smart phone and an old-fashioned wrist watch! So I have to buy something to measure HRV and I chose the corsense device because it seems to be the most accurate and the easiest to use, just like a pulse oximeter.
I don't have a phone sensor or any device that measures HRV. I have a plain smart phone and an old-fashioned wrist watch! So I have to buy something to measure HRV and I chose the corsense device because it seems to be the most accurate and the easiest to use, just like a pulse oximeter.
Great post! I’m also wanting a heart rate monitor.
Choices, choices!
The Corsense sounds ideal, but as a struggling active parent (violins) I need something I can wear outdoors as well. Accuracy is important but so is wearability 🤔
I do find it hard to make choices....... If anyone has anymore info about the wristband/smart watch kinds please do share.
I'm very glad and appreciative that you wrote your "novel"! This is all new to me. I've had ME/CFS for 22 years. I've made a fair amount of progress with various supplements and muscle testing (which helped enormously with my previous almost constant detoxing, which is pretty much gone now) BUT I've made no significant strides in extending my energy envelope, in being able to do more. I feel better overall when I'm not crashed but still crash with very depressing regularity. Anyways, working with HRV is definitely worth an experiment for me - if I can extend what I'm able to do without crashing would be amazing! At least it's something to occupy my active brain which wants to solve everything!Sorry if I ended up writing a novel there but I didn't want you to get the idea that tracking heart rate variability was any sort of 'quick fix'. It is long and hard constant experiment to try to figure out what techniques are working when it comes to pacing. The reason it has been a game changer for me is now I have real mathematical numbers to help me figure out what is going on instead of just hoping to make a best guess when it comes to how I am feeling.
@gbells - I'm very happy with my Samsung Galaxy S8, it has a fabulous camera. So I'd rather put the money into the Corsense and use their free app.
I'm very glad and appreciative that you wrote your "novel"! This is all new to me. I've had ME/CFS for 22 years. I've made a fair amount of progress with various supplements and muscle testing (which helped enormously with my previous almost constant detoxing, which is pretty much gone now) BUT I've made no significant strides in extending my energy envelope, in being able to do more. I feel better overall when I'm not crashed but still crash with very depressing regularity. Anyways, working with HRV is definitely worth an experiment for me - if I can extend what I'm able to do without crashing would be amazing! At least it's something to occupy my active brain which wants to solve everything!
Seriously, I do appreciate everything you've written. I did order the Corsense yesterday and have no regrets!