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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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PACE Study is watershed. No fence to sit on now.

drjohn

Senior Member
Messages
169
LETTER, Re: Is exercise always good for the body? (Edinburgh Evening News, 15 April 2011)

PERMISSION TO FORWARD, USE IN NEWSLETTERS AND RE POST ON FACEBOOK PAGES

To read a letter from Dr John Greensmith
click http://mefreeforall.org/wp/re-is-ex...he-body-edinburgh-evening-news-15-april-2011/
Short link http://tinyurl.com/6j6l8ht

Any letters in response should be sent to e-mail address
letters_en@edinburghnews.com

May I urge as many as are able to send an e-mail and leave the same or a different comment under the article online, bearing in mind that, although there may be some overlap, they can be two quite different readerships. The more of us who do, the better the chance of at least one being published,

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Cheers
John
drjohngreensmith@mefreeforall.org
Dr John H Greensmith
ME Free For All. org
 

jace

Off the fence
Messages
856
Location
England
Resurrecting this thread to show you two videos that clearly show how the "results" of the PACE study were manipulated

[video=vimeo;21852891]http://vimeo.com/21852891[/video]

[video=vimeo;21850334]http://vimeo.com/21850334[/video]

Quick, clear and painless (unlike GET and CBT)
 

liquid sky

Senior Member
Messages
371
Great videos. Thanks. I have been through GET and CBT at different times in my illness. Having others to talk to, making you feel like someone really gets it can be uplifting. It does not in any way improve the illness. Exercise can be very detrimental to PwME. Most pain management centers require some form of GET and CBT to continue receiving pain medications.

It is amazing how people cannot understand an illness that they cannot see. I notice how people treat those with visible infirmities compared to those whose pain cannot be seen. Even physicians need a test or x-ray to believe that an illness is real. Hopefully, we will have that magic test soon.
 

alex3619

Senior Member
Messages
13,810
Location
Logan, Queensland, Australia
Absurdium

Hi, this is something I posted to an XMRV thread, but I thought a PACE thread could do with some humour.

Exercise can cure ME/CFS. It doesn't matter how sick you are. Since exercise makes you sicker, every little bit will make you sicker faster. As you become totally disabled, just staying alive will be like infinite effort. If exercise can cure, then infinite effort will cure instantly. So the way to be cured is to exercise until you are totally incapacited.

Disclaimer: Actual results may vary. The results claimed in this article are for hypothetical patients with a hypothetical diagnosis. Please do not try this at home. Please pay lots of money to one of our consultants.:innocent1: