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Great idea, but they will have to use color codes or something other than avatars for the count because as more pwc's sign on, the map will become covered in no time.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Great idea, but they will have to use color codes or something other than avatars for the count because as more pwc's sign on, the map will become covered in no time.
Good idea, Ross, especially on the zoomed-out view. If you zoom in, there's more room around each little person. It was kinda fun to click on "mine" and see a GoogleEarth photo of my post office!
George, it roughly correlates with the size of population, the UK have about 60 m inhabitants, Germany 80 m.
With regards to criteria I guess it's the same as anywhere else: No consistent set of criteria is being used. Some use the Fukuda, others the CCC and a lot of doctors don't use ANY at all and base the diagnosis on what they have heard about the disease.
In my opinion the 17 million are very likely including a lot of people with "Reeves disease".
It's interesting--in the US, it seems to be clustered in the East. Maybe that will change as more people sign up.
^ Yeah, it's interesting. I think the map's main skew is English-speaking countries plus some other European countries (since we are posting in English).
Looks like they're going to move this thread over to Advocacy. Which seems right to me, so there won't be confusion about whether it's scientific - pretty sure it's not.
Thanks Jace....I forgot about this map. It has really filled in. I've been curious for some time why we see minimal reports of ME/CFS from certain areas such as the Middle East, Asia, and South America. I know that language barriers are not the issue because I interact with 100's of people from those areas on line in non ME/CFS forums. Can't be censorship either. I remain curious.
Mark, I don't know how much of the distribution on the ME map is due to where people have computers, join in the internet and speak english?
I've been curious for some time why we see minimal reports of ME/CFS from certain areas such as the Middle East, Asia, and South America. I know that language barriers are not the issue because I interact with 100's of people from those areas on line in non ME/CFS forums.