OMF—test of a new idea for treatment of ME/CFS.

[jaybee00]

https://twitter.com/i/web/status/1243930864347725827

https://twitter.com/i/web/status/1243930972204261377

https://twitter.com/i/web/status/1244138243437645825

Good News.

 

[Canned]

What do you think this could be?

Treatment dosnt sound like its a drug. More like a treatment-procedure. My guess is that this has something to do with the „something in the blood“. Possibly a dialysis to filter it out?

 

[andyguitar]

Yes sounds like something along those lines. If so then they must have found what the 'Something in the blood' is.

 

[Canned]

I think they know at least the size of it. Possibly Prusty found out what it is. Ron had a video-call with Prusty the other day.

 

[Wishful]

Filtering something out won't be much good if it keeps being replaced quickly. Personally, I think it's a wrong approach, since my ME symptoms could flare up or disappear completely over the space of minutes, which doesn't fit with 'something in the blood' appearing and disappearing.

 

[ljimbo423]

I think they know at least the size of it. Possibly Prusty found out what it is. Ron had a video-call with Prusty the other day.

This is the size of the filter Ron Davis used to filter out most of what was causing mitochondrial dysfunction.

Rons' wife Janet posted this on March 8, 2017 -

.Big = larger than 10,000 molecular weight. Proteins, protein groups or antibodies (including autoantibodies). Amino acids are smaller, around 300 molecular weight

http://forums.phoenixrising.me/inde...ow-up-to-2-21-17-research-update.49749/page-6
Post # 115

 

[MonkeyMan]

Ron had a video-call with Prusty the other day.

@Canned - that's great to hear but how do you know this?

 

[Wishful]

Alpha synuclein is around 60 kDa, which, if I have it correct, would be 64000 molecular weight. It seems to be in the right range to be a possibility.

 

[raghav]

Prusty shared his data to be published with Ron Davis.

 

[sebaaa]

Prusty shared his data to be published with Ron Davis.

How did you find out about this? Do you have an ETA for when this data should come out?

 

[raghav]

How did you find out about this? Do you have an ETA for when this data should come out?

Prusty replied to my mail when I asked him about the news that he had a videoconference with Ron Davis. Regarding when he will publish, it all depends on when the German authorities allow researchers to go back to their labs and also the availability of lab reagents and accessories like masks and gloves.

 

[Badpack]

Im not hopeful about plasma exchanges and Cfs. I had 7 exchanges in 10 days and it did absolutely nothing for me. I also know 2 ppl who also underwent it. Also nothing. So dont expect to much from it if they really go for that now.

 

[MonkeyMan]

Im not hopeful about plasma exchanges and Cfs. I had 7 exchanges in 10 days and it did absolutely nothing for me. I also know 2 ppl who also underwent it. Also nothing. So dont expect to much from it if they really go for that now.

Well, let's not get ahead of ourselves here. It's pure speculation what type of treatment Ron Davis is looking at. And even if it's got something to do with filtering the blood, it may be very different from a standard plasma exchange.

It's pointless to speculate at the moment.

 

[bread.]

Im not hopeful about plasma exchanges and Cfs. I had 7 exchanges in 10 days and it did absolutely nothing for me. I also know 2 ppl who also underwent it. Also nothing. So dont expect to much from it if they really go for that now.

that is really bad news. how severe are you?

 

[Badpack]

@bread. Pretty severe by now. Im lying 23h in bed and 1h some daily needed activities. I wasnt expecting a full recovery from those plasma exchanges, but at least a medium relief for a short time for how severe i am. But absolutely nothing.