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Nothing against Lupus!

jimbob

ME/CFS84-XMRV+
Messages
321
Likes
9
Location
myrtle beach, s.c.
Two nights ago local news had coverage of a fundraising event in our city. It was for Lupus and there were hundreds of people walking. At the end of the piece they announced they had raised $20,000.00! I thought would'nt that be nice if I could do that for me/cfs, but then reality set in when I realized that 99% of the population doesn't have a clue what cfs/me is! It's a crying shame, that after all these years, we are still hidden in the shadows!
 

Frickly

Senior Member
Messages
1,049
Likes
39
Location
Texas
I feel the same way when ever there is an MS bike or walkathon. My symptoms are almost identical to MS but there are no walkathons for us. we are invisible and it took alot of work by many people to make sure we stay invisible.