(Not illness specific) "All Trials Registered | All Results Reported" campaign

[Dolphin]

http://www.alltrials.net/

All Trials Registered | All Results Reported

Thousands of clinical trials have not reported their results; some have not even been registered.

Information on what was done and what was found in these trials could be lost forever to doctors and researchers, leading to bad treatment decisions, missed opportunities for good medicine, and trials being repeated unnecessarily on people and animals.

All trials past and present should be registered, and the full methods and the results reported.

We call on governments, regulators and research bodies to put in place measures to achieve this.

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On the site, there's a petition, as well as other information on the campaign. No major friend of the ME/CFS community are involved but we can still benefit e.g. the PACE Trial investigators have said they are not releasing results for some of the outcome measures from the UK£5m trial.

 

[Sean]

An initiative of Bad Science, Sense About Science, BMJ, James Lind Initiative and Centre for Evidence-based Medicine.

Data will be held by Sense About Science.

Sigh. Can't always pick your allies on every issue, I guess.​

I signed. It can only be to our benefit. Eventually...​

 

[Esther12]

Thanks Dolphin.

 

[barbc56]

I just signed!!!! Thanks!!!!

 

[Sasha]

Signed. Thanks, Dolphin.

 

[Simon]

Signed a while ago - just seen it here; good idea.

 

[peggy-sue]

done, thanks for the link!