mango
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Landmark was supposed to give a talk on Lightning Process at RBUP (the regional center for child and youth psychiatry) in Nydalen, Norway. The talk was cancelled thanks to the protests by the Norwegian ME Association.
http://www.dagensmedisin.no/artikler/2016/04/22/avlyste-lp-foredrag-etter-klage-fra-me-foreningen/
Based on Google Translate's version:
Dagens Medisin: Avlyste foredrag etter klage fra ME-foreningen
Live Landmark skulle holde foredrag om Lightning Process for RBUP Øst og Sør. Etter at ME-foreningen klaget på saken avlyste RBUP foredraget.
http://www.dagensmedisin.no/artikler/2016/04/22/avlyste-lp-foredrag-etter-klage-fra-me-foreningen/
Based on Google Translate's version:
Lecture cancelled after appeal from the ME Association
Live Landmark was supposed to give a talk on Lightning Process for RBUP East and South. After the ME Association complained RBUP canceled the lecture.
Published: 2016-04-22 6:00
CANCELED: LP instructor Live Landmarks lecture on Lightning Process was canceled. - I think academic debate should be characterized by open debate, she says.
The Regional Centre for Child and Adolescent Mental Health in Region East and South had invited Live Landmark to give a lecture on mental training Lightning Process and ME in April. Landmark is, according to her own website, mental trainer, lecturer and course instructor.
The lecture was to be held in a so-called KAT café [KAT = CBT in Norwegian -mango]. The main audience was, according to the organizer, therapists at BUP [Child and Adolescent Mental Health Services], but the course was open to all pre-registrants.
Cancelled
The lecture was canceled.
- RBUP has in its mission to be responsive and to engage in dialogue with NGOs. It was a letter from ME Association that got us to re-evaluate the program, says Eyvind Elgesem, acting director of the RBUP East and South.
Commercial company
Live Landmark refers to mail exchange with RBUP and that there was expressed concern about unfortunate media coverage if they would conduct the lecture.
- Later I got another explanation, namely that the lecture was canceled because I am commercial entity. But I was just going to give a lecture and not to enter into a collaboration. RBUP is also associated with several commercial operators, so this falls on stony ground, says Landmark.
She asks if it is correct that a public agency like RBUP shall be pressured to the extent that they are canceling an event on short notice, because a user organization exerts pressure.
In needs if knowledge
ME Association writes in their letter that you offer alternative treatment, which is not offered by the public health services - do they have a point here?
- LP is not treatment, but training in a mental exercise where participants learn to identify and influence thoughts, feelings and bodily symptoms. RBUP is a public body working in education, and will come up with new methods and approaches. Many people with CFS diagnosis using LP and cognitive therapists therefore need to know what LP is, she says.
She believes academic debate should be characterized by open debate.
- It's funny that the ME Association is working against sharing information about anything that may be useful for patients, despite an urgent need for treatment. Putting a muzzle on me is a democratic issue and should not be supported by a public agency, she says.
Critical input
Elgesem says the reason they invited Landmark basically was that many patients have to assess whether they should go on the LP course, and want advice on this. Landmarks lecture was one of several lectures related to the treatment of children and adolescents with ME.
- Are you being subjected to pressure?
- ME Association had critical input to all our events. We considered the totality of the event and every single bit of it, and decided to cancel the part with Landmark because she is a major commercial player in a controversial field. The other schemes we chose to maintain, despite the ME Association's concern, he said.
- But you have several commercial partners?
- The reason for canceling is "cautiousness when cooperating with commercial actors", not that we shouldn't do it at all, he said.
Culpable
In their letter to RBUP the ME Association writes, among other things, that RBUP Eastern and Southern will be co-responsible if ME-ill children and young people enter into this training program. The disease can worsen for some and it can have drastic effects on the individual in the long term, says the letter.
Olav Osland, Secretary General of the ME Association, said the association is skeptical of LP because they believe it may aggravate the condition for many, partly based on a separate user survey.
- We can not sit and watch the method being presented by the Ministry of Health as a possible alternative for ME patients when we know how unsafe the method can be, he says.
Conflicts of interest: Live Landmark's LP instructor lectured and conferences, and she has written the book "Wake me when it's over."