At the just-completed CDC Grand Rounds, Dr. Avindra Nath of NINDS spoke fairly quickly and he presented a lot of details. I didn't take good notes, so others should fill in.
- NIH will do a 3 phase study, starting with observation (the first study w/ 40+ patients) through treatment
- Immune profiling, microbiome, autoantibodies a few things studied
- Testing will be done pre- and post-exercise
- 1500 cytokines/analytes will be examined in immune cells
- NIH will make stem cells + neurons + humanized mice with ME patient cells - they are making a mouse model of the illness
- Patient Advisory Committee will help guide the studies
- 25 + people at NIH working on the study
- Drs. Unger + Lipkin are senior advisers
Lots more details went by too quickly for me to type out.
- NIH will do a 3 phase study, starting with observation (the first study w/ 40+ patients) through treatment
- Immune profiling, microbiome, autoantibodies a few things studied
- Testing will be done pre- and post-exercise
- 1500 cytokines/analytes will be examined in immune cells
- NIH will make stem cells + neurons + humanized mice with ME patient cells - they are making a mouse model of the illness
- Patient Advisory Committee will help guide the studies
- 25 + people at NIH working on the study
- Drs. Unger + Lipkin are senior advisers
Lots more details went by too quickly for me to type out.
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