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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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There does appear to be a correlation which anyone who's been on this forum for over a decade will realise between early years and later years.
In fact whilst confusing the cyotokine page on me-pedia.org lists tons of studies that show this. Cytokine profiles change rapidly early Vs late. Stages of viral reactivation make total sense.
We desperately needed a longitudinal survey to put most of this data together
I respond very well to valtrex and have no symptoms of hsv 1 or 2 and it doesn't touch CMV so it can only be ebv.
Is there an actual instruction web page / doc about, telling you the regime for this? I've found the Twitter page for it, but still no exact instructions as to how to start.
Or is it just a case of starting each day with a patch, starting off with 3.25mg and trying to move up to 7mg / what you can tolerate?
You folded the patch, right? If you cut it, that might explain the irritation. You could look around for advice about where to place the patch if you're getting irritated. I imagine irritation would get worse as you increase the dose.Got two different doses of packs. Couldn't get the recommended brand, but I doubt it matters much. So what I've tried was 14mg Niquitin, halved. Might try upping the dose to 10.5mg, with the 21mg Nicotinells.
I've never been a "smoker", I got sick when I was young and I would sometimes have a cig if i was out with friends drinking. I have known people who were smokers and got sick and kept smoking. One guy I'm thinking of does rather well for an ME person though. but, we all know that coorlation doesn't mean causation, well, some people know that, i guess. I have taken a few puff of a cig after getting sick and I remember this overall calm and well being feeling. And I think this is why so many people with anxiety can get into smoking. But i also felt a bit lightheaded, dizzy from what i recall. but i was so shocked at feeling the nicotine hit my system and feel it move through out my body quickly. I've been eating so well and not around chemcials and being as healthy as can be for decades when i tried it, so i guess i could feel it hit my sensitive system harder. Makes me curious to try one again to see if it would give that calm feeling. I could never smoke as thing, i could feel it if i smoked too much one night when i was young and healthy. But i was always pretty health minded, I'm from Los Angeles where hiking, eating organic and working out are just the norm for many.Well my thinking is, also, if it potentially does work, then surely nobody that smokes would get ME, right?
So I guess the question could be to everyone would be, did you smoke when you got ME?
You have to figure out your own daily dose. I started at 3.5 and that was too much. I ended at half of that, daytime only, and it still trashed my sleep.