Bob
Senior Member
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- England (south coast)
Cartwheels (AKA going *rse over *it) is dangerous for your own health or any person or family pet in the immediate vicinity.
So how is your cat now Adam? lol
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Cartwheels (AKA going *rse over *it) is dangerous for your own health or any person or family pet in the immediate vicinity.
So how is your cat now Adam? lol
...the UK has a magic anti-xmrv forcefield: what gives??
This is great news, regardless of the outcome of their study. Even if they do not find XMRV, they will have started on a journey to help find solutions for CFS. And GSK has the resources to figure out what is actually going on in ALL of the XMRV studies. And maybe this will spark an interest, somebody in the medical/parmaco community has to be smart enough to realize what a large untapped market we represent.
My cat showed her displeasure at my cartwheeling attempts in her own inimitable fashion. The stitches come out on Tuesday!
Controvertial to say this here probably, given the arguments about cohorts and patients and selection criteria, but what if ultimately a whole category of teenage onset anxiety-related disorders (such as panic disorder or eating disorders for example) were also discovered to be caused by this retrovirus. Who knows where the boundaries will end? We ME patients are maybe just the linkpiece in a much bigger picture.
Imagine if there is ultimately a big switch of anti-depressant usage over to anti-retroviral medication. GSK would have a huge market to mop up.
GSK is not exactly an independent lab. Probably not the best player to confirm/refute WPI study as they have financial interest. Nonetheless, it'll be another data point and I'm sure it'll be evaluated by the scientific community with GSK's interest in mind.
Let's all say it together:
http://www.youtube.com/watch?v=iTB1h18bHlY
And if you want to sing it:
http://www.youtube.com/watch?v=x3U9kufW3bQ
For the men. And for the ladies, here is your representative so you don't have to risk anything: http://www.youtube.com/watch?v=1r9drhGKpt4
And for the ladies, and also so the men don't have to do anything: http://www.youtube.com/watch?v=md_8WJzhsow
Tina
I want to be exploited by a drug company!!!!!!
Anyone check the health insurance co's share prices today?
that's exactly what those negative UK studies should have concluded: "We conclude that the UK has a magic anti-xmrv forcefield."
Because it would have been more scientifically useful than the conclusions that they did come to!
Though the idea of drug industry vs. health insurance industry is very sad. Like "Kramer vs. Kramer". Or "Alien vs. Predator".
However, I hope that since the CAA Biobank is involved, CAA has a contract with GSK stating that results, negative or positive, must be published. I am glad that Dr. Lapp was clear in his newsletter about funding but the CAA should also have mentioned this in their press release about the Biobank to be transparent.
First we want a retrovirus, now we want to be exploited by pharmaceutical companies....
We really have gone mad, haven't we?
Yes, I am crying (in anticipation) for the insurance industry. Boo hoo.
But I am more worried for XMRV +ve people who will not be able to get various/any type of insurance cover in the different countries of the world. Many terms and conditions exclude people with HIV. Will this be the same for XMRV? And will insurance companies apply any changes to terms and conditions retrospectively?
Apologies if this is a digression.