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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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My story so far ...

roller

wiggle jiggle
Messages
775
good to hear, its goingg better.
did you ever find out more about that foot-sole-cramps?
 
Messages
65
Location
UK
I still can't believe this is happening, been three months, on the Dr Sarah Myhill regime/supplements.

Pain in ears, sinus, feet, arms, hands, muscles - Gone!
Fatigue, brain fog, weakness, drained, bad mood - Gone!

After three years of utter pain, fatigue, mood gone south and no "cure" from the GPs, specialists and consultants. It is gone, 180deg turn, vanished - I feel fantastic, a new me - after just three months.

I have started on pilates, laughed my head off in the first session. Becuase I could meet move my arms about in ways I couldn't before without pain.

Even upped my dog walks to 2x1 hour a day, plus the odd longer one, record 6.5miles on flat. Had a friend visit, where we stayed up well into the wee hours and chatted, up early, walked etc.

At the very most feel like I'm out off shape, no pain, no fatigue, no weakness. My rest days are working and I enjoy/need them, but they are way more active than my active days before.

The only one who is suffering is the dog, she is constantly tired, sleeping all the time. Here I was thinking that a collie-x would tire me out :)
 
Messages
65
Location
UK
Been asked what I'm taking. Easy everything that Myhill says that everyone needs regarding nutritional supplements and what she says is needed for mending CFS.

Mainly this lot :

http://www.salesatdrmyhill.co.uk/th...-taking-to-live-to-our-full-potential-2-c.asp

http://www.salesatdrmyhill.co.uk/im....asp?uid=a1abd546-74c0-4612-a912-58f2ce89a30e

Along with a 90% strict whole30 diet.

Got and follow her book and her online wiki. Just a note - sorry Myhill - but you can get some of the supplements on ebay and other online shops for cheaper and some even free shipping. Since I'm not working we need to save our pennies where we can.
 
Messages
65
Location
UK
http://www.woollypigs.com/2016/10/thank-you-dr-sarah-myhill/

Coming up to four years and never felt better, she (Dr Sarah Myhill) must be onto something
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