#MillionsMissing:
I have been housebound with Myalgic Encephalomyelitis (sometimes called Chronic Fatigue Syndrome) for nearly 22 years, since the age of 22 i.e. half my life. As I have only left my house for important appointments (and a summer break beside the sea), I've only needed one new pair of shoes (these) in those 22 years.
I have been ill in total 27 years since the age of 16. For the first four years, I was not too bad and was able (just about) for full-time education albeit with virtually no life during term time. However, unfortunately the lack of a concrete diagnosis and poor advice led my health to deteriorate until I became severely affected in 1994.
I am one of millions missing my life, which has led to the #MillionsMissing campaign & May 25 protests. See:
http://millionsmissing.meaction.net/ People with ME/CFS are demonstrating their support by sending shoes or a photo of their shoes because so many can't attend protests themselves.
I worry for the future as my carers are my parents who are now both in their seventies. Others already struggle worse than me. Here's the story of one person with very severe ME:
http://www.jkrowbory.co.uk/2016/05/...-about-my-life-with-an-acute-chronic-illness/
You can read my story at:
http://www.independent.ie/life/health-wellbeing/health-features/no-one-chooses-to-have-me-everything-changed-when-i-became-ill-34153140.html
Progress is needed sooner rather than later.
