Hi
@wintersky and others who've havd some expereince with TCM. Im currently in a bit of a pickle regarding it and need some advice - ill try my best to keep this very simple.
I started LDN but began to experience more severe M.E symptoms (more sensitive PEM) including having may glands constantly raised - a symptom i only remember from when i first became ill. Stopped LDN
Started a TCM formula to combat reaction to LDN ( the formula was: Bai Xian Pi, Dan Shen, Dang Gui, Gan Cao, Sheng Di Huang, Tu Fu Ling and Xiang Fu) which got rid of swollen glands and bad PEM. Previous uses of TCM had me on them for about week (used after a reaction to a vaccine, for example) and this calmed things down enough for me to discontinue with it and see a return to baseline without having to take any medicine. This TCM formula puts me in a hypnotic dream-like state - and ive been on it for over a month. It is very unpleasant.
I stopped TCM treatment, thinking my body would have recovered (like in my previous uses of TCM), but no. Glands swell up aggressivey again and fierce PEM returns.
My scientifically ignorant guesses as to what is happening are 2 things:
1. The LDN has disrupted my health very badly and the TCM creates temporary respite, whilst inducing unpleasant cognitive side-effects. TCM, unlike previous expereinces, has not helped the phase of this crash evolve.
2. Ive cought a virus or have an infection that some of the antiviral properties of the TCM formula are suppressing - which when I come off the TCM they simply return (i have no idea if this is how things work). In my panic ive had multiple sexual health screening and standard blood tests - both RNA tests (that test for genetic material of the infection/disease), as well as anitbody test - that test (I understand) for the replication of virus material. All these come back negative, but my concern is that the TCM formula is blocking these things from showing in a test - Tu Fu Ling (Smilax Glabra) and Shen Di Huang (Rehmannia Glutinosa) are apparently antivirals (they can treat syphilis I have read - I have no idea of their effectiveness). I spoke to a TCM practitioner and they said it is unlikley that the TCM formula would be strong enough to create a false-negative result, and the RNA tests show the presence of the illnesses genetic material (they are advised to be taken 10+ days after exposure before the virus/infection starts to replicate). According to these tests I am not infected, but I am tempted to start a course of Penicillin just in case i have an infection of some kind that (like I said) the TCM is blocking. Penicillin, however, could make my health even worse - ive purposely not taken any antibiotics in 7 years (whihc i bleiev has helped me stay at the baseline).
Ultimately im in a limbo state here - coming off of the TCM is painful and staying on it is horrible in a different way.
My plan so far is to have my TCM doctor prescribe me the same formula but without the antiviral herbs (Tu Fu Ling and Shen Di Huan) to see if when on it my glands come up again.
Any sugestions are help would be very much welcomed, i feel a little in over my head.