My experience with KDM and Lyme

mattie

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In regards to oral Abx being harmful to some and depending on how many you take over a period of time what about IV abx? Can they technically damage you? I thought they probably would not given they are a liquid.
Antibiotics will always harm you. To what extent, both short-term and long-term is impossible to predict.
There is tons of research about the damages done by antibiotics.
Both oral and IV antibiotics will wipe out your gut-flora. Not a good thing.
And no, that cannot be restored with some simple probiotics. (KDM: Vivomixx) You will have lost thousands of species and try to replace them with just a handful of new ones.
Truly restoring gut flora after heavy antibiotic use may require FMT.
 
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My experience with KDM is very positive. I organize my meetings with him very deliberately. Write down observations, questions, comments on one page if I can. Follow up questions by email- be very clear and specific. You may need to wait but will get a response. No doctor helps everyone, unfortunately. Good luck.
Thanks for sharing your experience also. I take it you ask questions before an appointment with him? do you email him directly or email someone who works under him?

Too right.. in my view i prefer to take a risk with things because i will only end up withering away if i dont, i am already in a lot of pain and dying slowly anyway. I know some things will not work and some will, i dont think the problem is always with the approach doctors lay out but sometimes the problem is that there are other avenues in our health that have not yet been looked into.

I liken it much to trying to build a house with bricks but not having cement. KDM may have the bricks but some of us may lack the cement and need to see someone else before we can get better.
 

unicorn7

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I know a few people who are treated for lyme in Nijmegen now. They started testing for co-infections and they are getting a lot of iv-antibiotics.

Iv-antibiotics are just as harmful as oral ones. It depends more on the kind of antibiotics (small spectrum vs broad spectrum). What kind of test did you do for lyme?
 
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I know a few people who are treated for lyme in Nijmegen now. They started testing for co-infections and they are getting a lot of iv-antibiotics.

Iv-antibiotics are just as harmful as oral ones. It depends more on the kind of antibiotics (small spectrum vs broad spectrum). What kind of test did you do for lyme?
Please tell me more, do you see someone in Nijmegen for IV?
Regards the IV abx I guess i learn something new everyday.

Hmmm to go through everything i have had done test wise would mean having to find the paper work which is stored somewhere, for now i will just say i had it done at igenex as well as Armin Labs. It was definitely a comprehensive testing done on it though, by that i mean it was more than just the antibody test.

If there was any doubt i have pretty much all of the Lyme symptoms except full on cerebral palsy and blindness, however half of my face is not functioning properly (my left side). I have just about enough strength and energy to get around, luckily i am not bed ridden (yet anyway).
 

unicorn7

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Just to be clear, I don't know if I would do the lyme treatment. I probably wouldn't. Maybe depends on how clear it is that I got lyme, I don't know. I only know that it's really hard to know for sure that you have got it. Plus that a lot of people that did have it, had to have antibiotics for longer than 2 weeks.

Gammanorm helped me in that it made my PEM less. When I overdid it before I took it, it would take 4-5 days to recover, with flu-like symptoms. Now I can do the same activity with just a hangover feeling the next day and on the second day I'm ok again.
It could always be a coincidence off course (as with all treatment) or an effect of other medication I have also taken, but if I would have to stop every medication, I would probably try and hold on to the gammanorm longest ;)
 
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@unicorn7
I noticed in your situation you took Abx but never mentioned what you were taking it for? Did you see KDM and then have him diagnose you with Lyme or something similar? What does PEM stand for?

Symptoms started in my teen years ten years ago, however I only started treating the last 2 and bit years, the only abx i have tried are flagyl and a few others, i have yet to try many of the combinations but figured oral abx are probably going to be useless as i am late stage anyway.

I think until i see improvement or have a herx i will never truly know where my health is going, i dont believe i am having a lack of herx due to not having Lyme, i believe it is due to Lyme being able to evade the meds and herbs, while i have not had a herx caused by meds/herbs i have certainly seen a flare up in symptoms when i take things like tumeric.

I focused mostly on herbs over the last 2 years because my view was that they were generally safer to take.

Intuitively i am 99% confident i have Lyme simply because i get worse around full moon for example.
I am not saying that with any certainty but something close to certainty.

The problem is that if i had gotten help years ago i would have likely healed with ease, since it is late now it is much harder to treat. The medical establishment in the UK is much to blame for neglecting patients and telling them they are completely healthy even when they suffer from clinical symptoms..

Chest pain, shooting pains, back pain, numbness, pain behind the eyes were all early symptoms for me.
 

unicorn7

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To be honest, not much of what you are saying makes a lot of sense to me. I'm sorry.

PEM is post-exertional malaise, the hallmark of ME.
I get (mostly small spectrum) antibiotics for my gut, I was not diagnosed with lyme.
 
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@unicorn7
By all means feel free to say what does not make sense.

I would hope gamma norm would indeed help any malaise i already have, that is my hope but i think i can only try it and see where it takes me. I am used to not really getting anywhere with these things after many years so you kind of feel things will not to work.

Thanks and best of luck to you