Much worse following bone marrow biopsy

[lenora]

Hi Andrew.......Are you being careful with your electrolyte balance? Staying hydrated isn't enough and the same symptoms can be caused by both dehydration and electrolyte imbalances. The symptoms are the same as you mentioned above. Keep some Pedialyte on hand.

It's an exceptional summer and even in the home some rooms are hotter/colder than others. All of us need to be very aware of this situation and also be aware that not just the outdoors is our enemy.

I recently read that temperatures as low as 92 degrees can result in heat stroke and no, you aren't always aware of it.

I'm sorry that you're having such a terrible time of things, but do be very careful of those electrolytes. A number of us have ended up in the hospital because of them. Feel better. Yours, Lenora

 

[Andrew]

I haven't given up, but don't a lot of people as they get older no longer have good energy, and they continuer to get weak. Because despite what my avatar looks like, I'm not a boy with a big head and a pet horse, I'm actually a 76 year old man.

 

[Hufsamor]

May I ask for how long you’ve had me/cfs?

 

[Andrew]

May I ask for how long you’ve had me/cfs?

Eighteen years

 

[Hufsamor]

Thanks .As I m slowly growing older with this disease, I’m kind of trying to make some sort of a plan …

will it burn out or will it get worse? And what may the age itself bring on the table? I know things happens, it’s not possible to plan for everything. But I believe, for myself, it might be smart to consider and do what I can do now, in order to make life as easy as possible in the years to come.

If you could give yourself an advice those 18 years ago, what would it be?
In order to make life now as easy as possible?

 

[Andrew]

Retire early, stay in bed as is practical, keep calm, hire a caregiver.

 

[Judee]

How are you doing, @Andrew??

 

[Andrew]

How are you doing, @Andrew??

Not well. Getting worse. I'm trying to do end-of-life planning just in case but it's confusing.

 

[Judee]

Not well. Getting worse. I'm trying to do end-of-life planning just in case but it's confusing.

Oh, no. That makes me sad.

I'm sorry you're going through that.

Praying.

Edit: After that periodontist visit did they put you on antibiotics?

On the documentary thread I posted about a YouTube channel called something like, "Theviolindoctor" I think it was. She had one episode where a man had some dental work and the infection in his mouth got stirred up by that and traveled to his heart valve, spleen and vascular system iirc. He almost died.

Maybe something like that is going on with you. Please get checked out soon if you think it could be something like that.

Edit #2: Here's that VIDEO I mentioned in case you wanted to watch it. Her segments are very interesting.

 

[Mouse girl]

Aw, Andrew. How are you? I'm worried you're not doing well. I know you have been really sick as just your baseline, so when you are sicker, it's ALOT.

 

[Andrew]

@Judee Thanks for the prayers. I take 2000 mg amoxicillin one hour before periodontist appts.

 

[Andrew]

This just goes up and down and up and down. Which is better than down and down. And I'm not even sure if this has to do with the biopsy. But the doctor is going to order and Xray of the location where the biopsy was done because it still hurts.

I guess I'll just have to see where this goes. But I'm not afraid anymore. I feel a a little hopeful.

 

[Hufsamor]

 

[Mouse girl]

This just goes up and down and up and down. Which is better than down and down. And I'm not even sure if this has to do with the biopsy. But the doctor is going to order and Xray of the location where the biopsy was done because it still hurts.

I guess I'll just have to see where this goes. But I'm not afraid anymore. I feel a a little hopeful.

oh, i'm so glad. so glad you don't feel afraid and a wee bit hopeful. just not feeling so scared is huge. i've been thinking about you and worried. i don't know if you remember, but i know you in real life. we were in the same support group and you hired me a few times to drive you around. just thought i would describe it rather than say my name.