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Much worse following bone marrow biopsy

Andrew

Andrew

Senior Member
Messages
2,517
Location
Los Angeles, USA
I had a bone marrow biopsy from my hip bone five days ago. I have been wiped out since that visit. This is much worse than usual following an excursion to the doctor. And it's not letting up at all My energy level has gone from bad to awful.

Worried about internal bleeding, I took my blood pressure. It is fine. There is no black and blue where the needle went in, but that would be a skin bruise, not a bone injury.

Have any of you had a bone marrow biopsy? Or, anyone know about this?
 
H

hapl808

Senior Member
Messages
2,114
Sorry to hear and nothing specific to offer, but I found as I got more severe, even minor doctor visits would sometimes wipe me out for days or weeks or longer. Even a 'normal' and successful bone marrow biopsy would probably knock me down for a long time. I've avoided even muscle biopsies at this point.

I hope you have a quick recovery and some good news from the biopsy. :(
 
linusbert

linusbert

Senior Member
Messages
1,157
Andrew said:
I had a bone marrow biopsy from my hip bone five days ago. I have been wiped out since that visit. This is much worse than usual following an excursion to the doctor. And it's not letting up at all My energy level has gone from bad to awful.

Worried about internal bleeding, I took my blood pressure. It is fine. There is no black and blue where the needle went in, but that would be a skin bruise, not a bone injury.

Have any of you had a bone marrow biopsy? Or, anyone know about this?
Click to expand...

did you get full narcosis?
some stuff like laughing gas drains your B12 stores. so maybe a bit of B12 replenishing course might help you?
 
anne_likes_red

anne_likes_red

Senior Member
Messages
1,103
Andrew said:
I had a bone marrow biopsy from my hip bone five days ago. I have been wiped out since that visit. This is much worse than usual following an excursion to the doctor. And it's not letting up at all My energy level has gone from bad to awful.

Worried about internal bleeding, I took my blood pressure. It is fine. There is no black and blue where the needle went in, but that would be a skin bruise, not a bone injury.

Have any of you had a bone marrow biopsy? Or, anyone know about this?
Click to expand...

I had some tenderness to the hip bone afterwards that I remember lasting a few days, but I experienced no additional PEM. I wasn't offered pain relief (apart from the skin anesthetic) for the procedure and I didn't find it painful, just a weird tugging sensation in the bone. I was relatively high functioning at that time though.
If you had sedation (?), I agree it could be that you're still recovering from.
I hope you're feeling better soon!
 
Belbyr

Belbyr

Senior Member
Messages
602
Location
Memphis
I was put to sleep for mine and recall the recovery being awful as far as pain and stress. Apparently they had to use some harsher tools to get through my bone.

I think it was once that local meds wore off, it was pain akin to a kidney stone. Very nauseated, very poor sleep, sick feeling, etc.

I think it took me at least a week before I felt like I was getting back to my 'normal'.
 
L

lenora

Senior Member
Messages
4,926
Hi Andrew....Why don't you give yourself a little more time. We're not all the same and our reactions certainly aren't.

I have two spinal taps about 3 wks. apart. The first was just fine. The second was difficult for not just me, but for the nurses and other patients. I was a mess. Why? The doctor was even the same....and I was conscious. My reaction, however, was totally different. Feel better. Yours, Lenora
 
L

lenora

Senior Member
Messages
4,926
How are you doing, @Andrew? I've been hospitalized a number of times and I'd say that everyone who is seriously ill and has blood drawn every 3-4 hrs. is the same bruised up mess that you're describing.

I'm happy to say that mine all healed without any marks whatsoever. The pain went away and I hope you're also doing better. Some of us do bruise much easier than others....mind you, I'm thin skinned and 75, but I was the same way at 35. Just the way I am.

I have a friend who truly is a mess after being in the hospital. She's very afraid of procedures because things look so serious. I think (!) I understand your concern. Give yourself this week and don't even touch the area. Wishing for less blue for you. Yours, Lenora
 
Rufous McKinney

Rufous McKinney

Senior Member
Messages
13,378
Im sorry @Andrew ....procedures are just hard on us I"m afraid. It probably just taking you some time to work through it.

Try not to worry. Rest, breathe. You'll feel better.

Keep us posted how your feeling.:thumbsup::pem:
 
Andrew

Andrew

Senior Member
Messages
2,517
Location
Los Angeles, USA
I was so busy worrying about how I felt I had forgotten the purpose of the biopsy. It was to test for a type of bone cancer called multiple myeloma. The doctor called me today with the results and I don't have multiple myeloma.

But I do have Monoclonal gammopathy of undetermined significance (MGUS), which is a myeloma-like state that might develop into myeloma. But with low risk of that happening. Still, I have to be tested more than once a year. But no biopsy, just blood test. And I don't have to go in. The doctor will send me the lab order for blood draw, and then discuss results on the phone.
 
L

lenora

Senior Member
Messages
4,926
Yes, I had a trip to the dentist's this week also. 2-3 hours or more and I find it just too much. So don't be surprised...especially when you think of the waiting room, being called for forms, adjustment of the dental chair, and whatever else one may need. It's worse than an ordinary doctor....for me, at least.

Still, as I get older I appreciate having my teeth and I'm told my gums are in great shape, especially for my age, and I'm grateful for that. I do take especially good care of them, so that's a small reward.

Since they're in such great condition, I think I'll make the next appointment for one year! Feel better, Andrew. You've accomplished a lot in a small period of time. Yours, Lenora
 
Andrew

Andrew

Senior Member
Messages
2,517
Location
Los Angeles, USA
Judee said:
@Andrew, are you feeling any better? Only answer when you are able to.
Click to expand...
After the periodontist I just got worse and worse. But it was also up and down, so I kept waiting to see if I would get better. But I didn't. It got really bad. I was barely able to do anything. And everything I did was major stress. Finally, I went to my primary care physician. That was two days ago. I expected him to just try to pass me off to my lung doctor but he surprised me. He gave me an injection of a powerful antibiotic and another one of the anti-inflammatory. I'm also on oral anti-inflammatory and an antibiotic. And so now I just wait and see. I'll know in two weeks. I'm also supposed to follow up with him.

Thanks for asking.
 
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