Minnesota MECFS

lenora

Senior Member
Messages
5,052
Finally! We've been waiting for at least 35 yrs. for the Mayo to even acknowledge ME/CFS/FM. Don't bother going to the one in Phoenix until you hear that an expert in this illness is on staff. Yours, Lenora.
 

Hoosierfans

Senior Member
Messages
408
Just wanted to update this thread with a review of Dr. Grach. A member of one of my ME / CFS Facebook support groups recently saw her, and was absolutely GLOWING in their review of her. Said she was empathetic, understanding, knows ME / CFS inside and out and was just overall amazing.

The patient who saw her didn’t elaborate on any treatments that were offered, but she absolutely recommended Dr Grach. Great to see that things may be changing at Mayo. 👍🏻
 

lenora

Senior Member
Messages
5,052
Yes, the Mayo Clinic was one of the worst places to go for a diagnosis of our particular illness (and many others).

I'm glad it's changing and taking this matter seriously. At last! Neurological illnesses was not one of its attributes. Yours, Lenora
 

Dakota15

Senior Member
Messages
337
Location
Midwest, USA
Thanks for sharing, @Hoosierfans

I’ve heard Mayo & Dr. Grach has led a real revolution there in a positive way.

I’ve heard several remark who had gone to MC recently “I never thought I’d live long enough to see this tangible change like this at Mayo, It’s truly transformational.”

From what I gather they have come a long ways. Kudos to them
 

Hoosierfans

Senior Member
Messages
408
Thanks for sharing, @Hoosierfans

I’ve heard Mayo & Dr. Grach has led a real revolution there in a positive way.

I’ve heard several remark who had gone to MC recently “I never thought I’d live long enough to see this tangible change like this at Mayo, It’s truly transformational.”

From what I gather they have come a long ways. Kudos to them
That’s amazing to hear. I had written them off long ago after my own terrible experience there, so I was quite surprised when I came across that post. And your feedback just confirms it was not a “one off” experience of that patient.

It’s especially great that she’s a younger practitioner, as a lot of the “big wig” / first generation ME / CFS docs (like Klimas, Kaufman, Peterson, Chia) are all approaching retirement age. It occurred to me the other day that I wondered who the “next generation” of great complex illness docs was, and it sounds like Dr Grach is one of them. 👍🏻
 
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