Mestinon?

rel8ted

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I don’t have the energy to start a thread on it right now, but I can PM you. It wasn’t one visit with this doctor—I saw him every few weeks for a few years.


That would be great. I have no idea what to expect & it’s like going on va action to get there, so anything I can learn in advance would be wonderful.
 

pattismith

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I would like to know if anyone has tried Mestinon before?

Did it help symptoms?

Any side effects?

I see Dr. Systrom is a big believer in it and claims good success with his CFS patients.
I tried a small dose and got diplopia….bad trip...:xeyes:
 

Pearshaped

...and then Life went pearshaped.
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I tried 10mg once and it made me much much worse.lasted two days.
when I felt better i tried it again.
And same thing happened again.

I guess you'll notice it rather quickly if its in anyway useful (or not)for you.

(I felt worse within 35minutes after taking it.)

I felt even more ill than before after taking it.was not funny at all.

But since it helps for some PwME its probably worth a try..
 

Sushi

Moderation Resource Albuquerque
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I am up to about 22 mg of Mestinon twice a day. I’d like to get to 30 mg but increasing the dose is hard for me—gut issues and headaches though once I get to the new dose it has had a good effect in preventing chronic headaches. I think it is also reducing PEM though the effects are somewhat subtle for me.
 
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I started mestinon at 15 mg once per day, then twice, and now 3 times per day. At first, I felt more fatigue and SO MUCH SWEATING mostly on my face and hands. I've been taking it for 2 weeks-ish and no longer feel tiredness from taking it, but I can say it is slightly helping with the muscle weakness and PEM!! I am still sweating so much on it... But, I am hopeful that once I increase to the 30 mg dosage things will improve even more so in terms of muscle weakness :)