free at last
Senior Member
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Hi everyone ive been wanting to talk to people for a long time about something that almost feels like a secret, although my family know, outside of that i dont tell a lot of people, and often feel embarresed to do so. But it feels different here, and i know most if not all will understand, even if they dont experiance the same thing, and not being face to face also helps me speak about this.
After battling numerouse fevers and symptoms in the early days of my ME diagnosis, and a couple of bad experiances with chicken pox ( when i was still in the early Chronic stages ) and a little later with influenza, My mind became so protective, of not catching anything that causes fever, ( mostly influenza but there are others ) I started to lock myself away in the flu months, mostly between nov and late april to avoid catching flu.
If members of my family during what my mind sees as the dangerouse months, cough or worse sneeze, i run a mile, and stay away untill i think its cleared, when in public i was putting heavy scarfs tripled up around my face in the belief it would stop me catching the flu or any illness that can produce fevers ( only in later years did i dicover it probably wouldnt have stopped it anyway ) constantly watching people when i had to go out, but refusing on the most part to go in supermakets on buses trains ect, The swine flu scare last summer after locking myself away the previouse winter, and doing the same this winter means i have been doing this for about a year and a half now, with hardly a break ( how nuts am i, yes i know ) Only recently have i got on buses and gone in supermakets with my family rather than do what i always do wait outside.
I feel stupid, i feel inadequate as a man, i feel crazy, i guess in a way its now sort of a mental illness, but come most summers ( except the last swine flu summer ) i do come alive and join the human race again as a normal person, so its only really a mental illness of sorts, its actually my mind trying to protect my body from any more viral illnesses. After one has had so many fevers in the past, with the onset of the ME illness and diagnosis, you would have thought my mind could cope more with a viral attack. Nope, opposite is true, because i was so scared back then, and wasnt really coping at all well in the early chronic days, its like my mind has been shattered by this and i cant seem to shake this fear, i think its actually verging on post traumatic stress disorder phobia. I just can not shake this fear in the winter, thats it, i cant go back to those days of what i experianced not even for a week, so i dont get better with this phobia, and i cant stop doing it. I am mentally affected so badly from the memorys of what happened in the past, that if i think about it i feel like crying again. But im ok if i dont think you know.
Has anyone else developed anything like this ? what should i do about it, do i qualify for disabillity payments on purely mental grounds ( i am now fairly able bodied ) i havent worked for so very long. my family struggles to survive on the money we get, i just feel useless and inadequate. I hate what this illness has done, but im one of the lucky ones to have got most of my health back,
why can i not become normal again, you bet in the summer i will live my life to the full, as i know you all would if you had recoverd like i have, unless swine flu comes back this summer, then ill probably go back to a house prisoner again.
I feel guilty joining this forum knowing how ill most of you still are, and how much better i am, and think i should get a grip, And dont deserve to be here.
Even though this has been the only time in 15 years that ive felt like ive belonged, and been understood by others who are going through what i did.
Sorry for always being self indulgent. it feels thats all i am, i cant seem to help it, this illness just messes people up, sometimes think maybe i should have just died, even though im glad to be alive, and see my 2 daughters grow up, Back then i wasnt sure i would
And simon wessley, peter white would say im just a little run down and deppressed, deppressed when i think back maybe, a little run down ( hardly ever now, though exercise has produced symptoms on occassion still ) More like the vietnam war in my head. Maybe i am just plain crazy. and dont deserve to have partly or mostly recovered. But all those fevers keep reminding me i was not mad. i was ill I will be tested for xmrv soon, and dont want the virus, but do too. I mentioned this early on in a thread here, Notice others all saying the same too, this illness is fxxxed up
After battling numerouse fevers and symptoms in the early days of my ME diagnosis, and a couple of bad experiances with chicken pox ( when i was still in the early Chronic stages ) and a little later with influenza, My mind became so protective, of not catching anything that causes fever, ( mostly influenza but there are others ) I started to lock myself away in the flu months, mostly between nov and late april to avoid catching flu.
If members of my family during what my mind sees as the dangerouse months, cough or worse sneeze, i run a mile, and stay away untill i think its cleared, when in public i was putting heavy scarfs tripled up around my face in the belief it would stop me catching the flu or any illness that can produce fevers ( only in later years did i dicover it probably wouldnt have stopped it anyway ) constantly watching people when i had to go out, but refusing on the most part to go in supermakets on buses trains ect, The swine flu scare last summer after locking myself away the previouse winter, and doing the same this winter means i have been doing this for about a year and a half now, with hardly a break ( how nuts am i, yes i know ) Only recently have i got on buses and gone in supermakets with my family rather than do what i always do wait outside.
I feel stupid, i feel inadequate as a man, i feel crazy, i guess in a way its now sort of a mental illness, but come most summers ( except the last swine flu summer ) i do come alive and join the human race again as a normal person, so its only really a mental illness of sorts, its actually my mind trying to protect my body from any more viral illnesses. After one has had so many fevers in the past, with the onset of the ME illness and diagnosis, you would have thought my mind could cope more with a viral attack. Nope, opposite is true, because i was so scared back then, and wasnt really coping at all well in the early chronic days, its like my mind has been shattered by this and i cant seem to shake this fear, i think its actually verging on post traumatic stress disorder phobia. I just can not shake this fear in the winter, thats it, i cant go back to those days of what i experianced not even for a week, so i dont get better with this phobia, and i cant stop doing it. I am mentally affected so badly from the memorys of what happened in the past, that if i think about it i feel like crying again. But im ok if i dont think you know.
Has anyone else developed anything like this ? what should i do about it, do i qualify for disabillity payments on purely mental grounds ( i am now fairly able bodied ) i havent worked for so very long. my family struggles to survive on the money we get, i just feel useless and inadequate. I hate what this illness has done, but im one of the lucky ones to have got most of my health back,
why can i not become normal again, you bet in the summer i will live my life to the full, as i know you all would if you had recoverd like i have, unless swine flu comes back this summer, then ill probably go back to a house prisoner again.
I feel guilty joining this forum knowing how ill most of you still are, and how much better i am, and think i should get a grip, And dont deserve to be here.
Even though this has been the only time in 15 years that ive felt like ive belonged, and been understood by others who are going through what i did.
Sorry for always being self indulgent. it feels thats all i am, i cant seem to help it, this illness just messes people up, sometimes think maybe i should have just died, even though im glad to be alive, and see my 2 daughters grow up, Back then i wasnt sure i would
And simon wessley, peter white would say im just a little run down and deppressed, deppressed when i think back maybe, a little run down ( hardly ever now, though exercise has produced symptoms on occassion still ) More like the vietnam war in my head. Maybe i am just plain crazy. and dont deserve to have partly or mostly recovered. But all those fevers keep reminding me i was not mad. i was ill I will be tested for xmrv soon, and dont want the virus, but do too. I mentioned this early on in a thread here, Notice others all saying the same too, this illness is fxxxed up