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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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ME/CFS doc in South Jersey area

Messages
16
Seen three different docs the past two years, labs come back normal and they pretty much say get more sun and start walking more (maybe take vitamin D supplement) I tried telling what I think iv'e had for the past 5 years and would like to try b-12 shot, myers coctail etc but they said I would just pee them out if i'm not depleted. I'm currently taking 4.5 mg LDN, 1200 NAC , 200 coQ10 & D-ribose. I feel like i've made improvements from last yr but still can't get a normal job bc of the persistent fatigue and brain fog, I have no pain. Currently investigating Mestinon, Famciclovir + celebrex and oxytocin. Would love to see an actual specialist bc I feel like i'm running out of time, my savings are depleted and I have no other source or income.
 
Messages
16
Hi - Have you had any luck? I'm in a similar situation.
Na, I have an appointment with a doc that webMD say chronic fatigue is one of the areas with experience, but when I was making the appointment they couldn't confirm this. It's the end of October so we'll see. You?
 

RyeRyeBread

Senior Member
Messages
123
Location
New Jersey, US
Same situation, looking for NJ docs

Just had 2 appointments with Dr. Deblasio in Hamilton area and...Well, he knew about CFS (not me/cfs) but he heavily insinuated right off the bat that my symptoms were probably due to anxiety, and when my bloodwork came back clear, he recommended "staying healthy" and exercise :headslap:
 
Messages
44
So sorry for your experiences. It's very insulting when doctors don't take us seriously. I've been there, too. I imagine most/all of us have. I wish I knew how to help! Keep us updated if you do find any good doctors.