taniaaust1
Senior Member
- Messages
- 13,054
- Location
- Sth Australia
Im calling upon anyone who wants to help bring change to ME/CFS to join me in a demostration Im going to do 25th-28th Nov (on one of those days, Im not well enough to protest at them all myself). Ive decided Im going to do this even if it means Im going to have to pay $100s for a taxi to get me there and back. As far as I can see .. I cant see a better place to do a demo for us. Please help me to correct the lack of attention ME/CFS is getting from medical professions etc.
On the 25th-28th Nov at the Adelaide Convention Centre (right in the city) is the 6th Australian Health and Medical Congress. http://www.ahmrcongress.org.au/ Note all the societies on their program who will be talking at this event about research .. sadly of cause there isnt one for ME/CFS to get any ME/CFS research out there in the eye of the medical profession. I want this changed. I want ME/CFS research to be represented at this conference, the medical profession isnt doing it for us.. so let us do it ourselves. Let us show others in the medical fields, that there is some fascinating ME/CFS research happening in the ME/CFS fields.
Im proposing this demo to be done by having signs with some of the latest facts from ME/CFS studies or quotes from studies. Lets get ME/CFS research heard!! Dont allow us to keep being not represented. Help the "Invisible Illness" to be seen. More ME/CFS presences then just I at this demo would be welcome so please think of joining me in this.
Thanks.
ps this is the first time Ive posted about this so hopefully there will be some response from others who will do it too. (Unless Im in hospital at the time, I will be going ahead with this demonstation). Bring your blankets, pillow to lay down on if need be, as I will be needing to do so too.
I wish they had ones like the newcastle ME/CFS researchers talking at this medical conference. We need a ME/CFS medical society who can give talks at such conferences.
*could a mod please correct my spelling of demonstation in the posts heading (mind fog) thanks.
On the 25th-28th Nov at the Adelaide Convention Centre (right in the city) is the 6th Australian Health and Medical Congress. http://www.ahmrcongress.org.au/ Note all the societies on their program who will be talking at this event about research .. sadly of cause there isnt one for ME/CFS to get any ME/CFS research out there in the eye of the medical profession. I want this changed. I want ME/CFS research to be represented at this conference, the medical profession isnt doing it for us.. so let us do it ourselves. Let us show others in the medical fields, that there is some fascinating ME/CFS research happening in the ME/CFS fields.
Im proposing this demo to be done by having signs with some of the latest facts from ME/CFS studies or quotes from studies. Lets get ME/CFS research heard!! Dont allow us to keep being not represented. Help the "Invisible Illness" to be seen. More ME/CFS presences then just I at this demo would be welcome so please think of joining me in this.
Thanks.
ps this is the first time Ive posted about this so hopefully there will be some response from others who will do it too. (Unless Im in hospital at the time, I will be going ahead with this demonstation). Bring your blankets, pillow to lay down on if need be, as I will be needing to do so too.
I wish they had ones like the newcastle ME/CFS researchers talking at this medical conference. We need a ME/CFS medical society who can give talks at such conferences.
*could a mod please correct my spelling of demonstation in the posts heading (mind fog) thanks.