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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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ME/CFS Advocacy Day April 20! Any Mainers Want to Register?

Rebeccare

Moose Enthusiast
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9,066
Location
Massachusetts
As you may know, the Solve ME/CFS Initiative and Long Covid Alliance have organized the 5th annual ME/CFS (and now also Long COVID) Advocacy day on April 20! They're trying to get people from as many congressional districts as possible to register in order to reach a large number of congressional delegates.

Of course, you can sign up to participate if you live anywhere in the United States! Here is the link to register: https://lobbydayregistration.wufoo.com/forms/wrhhmgk0az2gr2/

But right now there is a particular need for people from Maine to register to ensure that their senators and representatives hear the voices of people with ME/CFS! So if you live in Maine, please consider signing up today!

Your first time lobbying? Not a problem! The Solve ME/CFS Initiative will make sure that you feel supported and know what to do.

Although the final deadline to register is April 6th, it's suggested that people sign up by *this* Tuesday, March 23rd.