Gingergrrl
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It's not a focus of mine either and honestly, when someone says you will never get well unless you help you microbiome, I am Leary. I agree the gut is a huge issue, but I have other issues that are foreshadowing it to a level of ....one...thing...at a time. I am on so many things right now suddenly.
I don't know that I am leary of it vs. I just don't feel it is the source of the problem in my particular case. I was negative on SIBO test, negative for H-pylori, and negative on other GI tests. I don't have current GI symptoms and I tried too many probiotics to even count (back in 2013 & 2014) and they never made any difference. I had major GI problems as part of my MCAS but once the MCAS went into remission, they were gone.
@Gingergrrl -thank you! I so hope so, too. I am waiting for Maitland to order it as I talked to her and now she does not want me working with my doctor.
So without that local doctor, does that mean you will have to travel to Dr. Maitland for IVIG or will you do it at home with an infusion nurse?
I have actually made some jewelry!
That is great news!
I see a dysautonomia neurologist on Tuesday.
Is it a consult or will you be having a TTT or other testing? My experience with a dysautonomia neuro was a true nightmare although it led to the discovery of the weird autoantibodies and I will always be grateful for that part.