Map of US Based ME/CFS, POTS, and Lyme Doctors (Feedback Please!)

[Diwi9]

Just thought of another one: Dr. Lisa Nagy. Don't know much about her, but she was featured on an episode of "ME/CFS Alert." I think her speciality is environmental medicine/mold.

ETA: Her clinic is in Martha's Vineyard.

 

[Jesse2233]

Just thought of another one: Dr. Lisa Nagy. Don't know much about her, but she was featured on an episode of "ME/CFS Alert." I think her speciality is environmental medicine/mold.

ETA: Her clinic is in Martha's Vineyard.

Thanks Diwi. I'd forgotten about her, really enjoyed her interview

 

[Gingergrrl]

@Jesse2233 Can you add Dr. Janette Hope for the Mold/CIRS doctors in Santa Barbara, CA?

 

[Hip]

Updated version 3 with more doctors including CIRS and MCAS

Looks good, Jesse, and more readable and easier on the eye than the Google maps version.

 

[tudiemoore]

Since I know nothing about creating something like this, or anything at all re: technology , I will chime in as a seriously right-brained CFS-er, Lymie--

Always hard to sort through lots of info-but visual is definitely the best-so---what about the map as a series of "overlays"?
Or whatever the term would be--

This would be helpful to me--
A. Basic map showing ME/CFS docs, but if you want to know where you might find a Lyme specialist, bring in
B. Basic map overlaid with an addition, adding docs for Lyme, if you need to look for MCAS docs, add
C. Etc.
This could be a simple visual and then become more and more detailed as my search continued.

Failing to see a Lyme doc in an area I am searching, I can make a search of ME/CFS docs as a start to treatment, etc.

I can "see" this more clearly than I can explain it!
And maybe others wouldn't find this a benefit?
And maybe it would be to complex to create?
Don't know; just letting my mind meander...
tm

 

[tudiemoore]

Anne Corson, PA?
tm

 

[tudiemoore]

Jesse2233, I didn't read this thread very carefully!
I overlooked your statement about layering in more detailed maps for clarity. This looking more and more awesome!
Thanks for your ideas, expertise and time-consuming work--
tm

 

[Orthrus]

I am wondering if Dr. Patricia Salvato is still practicing and still considered a good doctor for CFS (in Houston). I used to see her when I lived in TX, but it has been decades.

 

[nryanh94]

Pocinki has over a 6 month waiting list. In order to get on the list you have to pay $45 a month for his concierge service. At the moment they won't add anyone to that list and said to check back in 3 months, so it would probably take 9 months plus to get an appointment with him

 

[pibee]

You dont need to bother to create European map because there are no European ME doctors, lets be honest, except KDM, .. i have nobody even to write me Rx for Valtrex..

 

[Hip]

i have nobody even to write me Rx for Valtrex

Hence why many ME/CFS patients need to order drugs online at prescription-free pharmacies: Tips for Finding Reliable and Trustworthy Online Pharmacies

 

[pibee]

Hence why many ME/CFS patients need to order drugs online at prescription-free pharmacies: Tips for Finding Reliable and Trustworthy Online Pharmacies

they charge it 3-4x more, so for valtrex 70 eur vs 300 eur a month, in 1 year that's 2500 eur, for that price i can fly to USA, pay consultation with ME doctor and even some testings

or i can simply Photoshop my Rx... not that I would ever do it!

 

[Hip]

they charge it 3-4x more

Online pharmacies selling generic drugs usually charge a lot less, eg Valtrex $1.50 for a 1000 mg tablet.

 

[pibee]

Online pharmacies selling generic drugs usually charge a lot less, eg Valtrex $1.50 for a 1000 mg tablet.

hm i checked 2 pharmacies you posted and it was huge price, .. will check again. i get 21 x 1000 mg for 21 eur in Austria.

 

[Hip]

i checked 2 pharmacies you posted and it was huge price

AllDayChemist is one of the very cheapest.

 

[Sancar]

Hence why many ME/CFS patients need to order drugs online at prescription-free pharmacies: Tips for Finding Reliable and Trustworthy Online Pharmacies

Thank you Hip!

 

[pibee]

Phillip Battiade has no licence to practice in USA, shouldn't be on the list (also for the fun fact that he is heilpraktiker, which is basically a course, only primary school education is needed + passing extensive tests but far from university degree, is like 6months course). His role at Infusio in BH is as entrepreneur/CEO.

Such clinics prey on our desperation, overcharge for fat stem cells, we shouldnt encourage that in any way .

Make my day and remove that guy from the map pleaseeee

 

[LizAtRest]

Just thought of another one: Dr. Lisa Nagy. Don't know much about her, but she was featured on an episode of "ME/CFS Alert." I think her speciality is environmental medicine/mold.

ETA: Her clinic is in Martha's Vineyard.

I live on the vineyard and don't see Dr Nagy for the simple reason that she costs a FORTUNE, so it occurs to me, are financial considerations going to be listed in any way? You could do it symbolically like $, $$, $$$, $$$$ and MI for 'most insurance' or something