Hi consuegra,
I'm an advocate too - for my daughter. She is 21-years old and has CFS, FM, POTS, IBS and adrenal insufficiency. We're going to have our 1st phone consult (ever) with Dr. Enlander. I imagine he is going to suggest either GcMAF, MAF 314/878, or both.
I'm not sure if he recommends these types of treatments to everyone, or only those with high nagalase levels. I guess I'll find out. I was wondering about your daughter's experience with MAF though. From your post above, you say that it normalized her nagalase levels. But, did her CFS symptoms improve correspondingly? And, after a year, you mentioned that it "lost its magic". Does that mean she started to have symptoms again, despite still being on the MAF? I'd appreciate any guidance you can offer. I've read your blog on the subject, and did see that while it can be helpful for some, it does not help everyone (which I know to be true of everything out there).
Thanks in advance.
Regards,
Scotty81