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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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@knackers323 Hi, I had treatment for Lyme, Bartonella, Borrelia (and CPn).@xrunner hi congratulations. Yes a Dx of cfs and mycoplasma fermentans.
What were you taking the antibiotics for?
What is involved with making it each week, how long does it take?
Initially it took me about three hours per week, after a few weeks with practice I cut that down to a couple of hours but I found that quite tedious... lots of washing up to do!How hard/long does it take to make the yogurt per week?
The main reason I stopped was that my Nagalase was well within normal range and I wasn't certainly willing to find out whether lowering it further below the lower end of the range would make me better or worse. About that time I also improved on hypothiocyanite so my focus shifted.xrunner,
Did you stop the MAF? Why? Did it stop bringing improvement? Was there a downside of MAF besides the prep work? Did it ever make you worse? What dosage did you take? Did you vary the dosage?
Cheney indicates that some patients get worse on MAF once their nagalase normalizes.
Thanks for the information.
I am surprised that MAF has disappeared off the radar.
Chris
Hi @consuegra@xrunner, I find your reference to hypothiocyanite of interest, never having heard of it. Can you relate something about it or have you written about it elsewhere?